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The People’s Trial: your chance to be a scientist in a fun online trial - 6 Aug 2019

Discussion in 'Health News and Research unrelated to ME/CFS' started by Sly Saint, Aug 16, 2019.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    full details here
    https://www.evidentlycochrane.net/peoples-trial-fun-online-trial/
    see also:
    https://thepeoplestrial.ie/about-us/

    any way we can use this?
     
    MEMarge, ladycatlover, Andy and 2 others like this.
  2. Trish

    Trish Moderator Staff Member

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    Interesting thought, but I'd steer well clear of anything ME related being drawn into this.

    It looks to me with my cynical hat on to be a PR exercise that will end up doing some sort of internet based junk science.

    The example they give of 'does cheese give you nightmares' sounds about the level they are looking for. I can think of lots of others. Does eating cucumber make you burp? Does washing your hair every day make it greasier? Does chewing parsley take away garlic breath...
     
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    that is just a 'fun example'
    see video



    on twitter
    https://twitter.com/ThePeoplesTrial

    egs




    eta: Professor Declan Devane outlines the project in a brief radio interview (from Aug8)
    https://www.rte.ie/radio1/ryan-tubr...the-ryan-tubridy-show-thursday-8-august-2019/

    the idea is that regardless of what the question chosen is, regardless of how trivial (it has to be non medical) they will take it through the same processes as a real RCT to teach people about the various stages and importance of all issues related to research trials.

    If people were to ask pertinent questions along the way about for example the importance of blinding, subjective vs objective outcome measures etc (all of which they will allegedly cover) then the point (without directly going into anything specific) that most RCTs for 'well-established' therapies are unblinded and use predominantly subjective outcome measures it might help to at least raise some questions (not necessarily Jo Public but the others following the project).

    Just a thought.
     
    Last edited: Aug 16, 2019
  4. Trish

    Trish Moderator Staff Member

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    Maybe eating cheese doesn't give you nightmares, but does make you remember your nightmares. The design of that trial is flawed. It's asking the wrong question. And it's far too complex - what sort of cheese, what quantity, what do you eat with cheese, how long before sleeping do you eat the cheese, how do you allow for only those who get nightmares after eating cheese bother to participate...

    Sorry, in a silly mood today.
     
  5. Snowdrop

    Snowdrop Senior Member (Voting Rights)

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    What's in it for Cochrane to do this I wonder?
     
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  6. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Why do a Cochrane Trial and what’s involved?
    This is a great opportunity for Cochrane to learn about randomised trials, how they can answer a clinical question, and why they matter, by being involved in one. In an age of misinformation, spin and ‘Dr Google’, it is really important that Cochrane is able to think critically about the health claims that confront us daily. Taking part in The Cochrane Trial will help Cochrane gain the knowledge and skills to do that.

    It will also help people understand more about how best to involve researchers in future trials at all stages, from prioritizing research questions to sharing the results in ways that are useful.

    Members of Cochrane, supported by the public, will design and run The Cochrane Trial, using different types of online participation and interaction that will include live video events and online decision making.
     
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  7. strategist

    strategist Senior Member (Voting Rights)

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    They are curating their image of being the authority on interpretation of clinical trials. Everyone should know Cochrane stands for expertise and quality :D:rofl:.
     
  8. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Maybe it's the old question of whether it's a conspiracy or just a Cochrane.
     
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  9. Barry

    Barry Senior Member (Voting Rights)

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    A further question therefore being: What's the difference?
     
  10. alktipping

    alktipping Senior Member (Voting Rights)

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    nothing wrong with a pr exercise especially if it is going to be educational . they can start by showing how biased research with cherry picking data should never get past their editors .
     
  11. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    What happens if they decide to do an unblinded trial with self-report outcome measures?
     
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  12. Amw66

    Amw66 Senior Member (Voting Rights)

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    Someone should
     
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  13. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Ah, they won't be so silly if they are supported by the public through live video events and online decision making.
     
    alktipping likes this.
  14. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    How much do you want to wager?
     
  15. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    This is not being done by Cochrane.
    "We are the Health Research Board-Trials Methodology Research Network (HRB-TMRN) based in NUI Galway"
    There is one person who worked for Cochrane on the team.
    Sarah Chapman "Sarah writes for, and edits, Cochrane UK’s blog"
    https://thepeoplestrial.ie/meet-the-team/
     
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  16. Caroline Struthers

    Caroline Struthers Senior Member (Voting Rights)

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    There is another person from Cochrane on the team. Anna Noel-Storr the person behind Cochrane Crowd.
     
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