chronic illness

Proteolethargy is a pathogenic mechanism in chronic disease Alessandra Dall’Agnese; Ming M. Zheng; Shannon Moreno; Jesse M. Platt; An T. Hoang; Deepti Kannan; Giuseppe Dall’Agnese; Kalon J. Overholt; Ido Sagi; Nancy M. Hannett; Hailey Erb; Olivia Corradin; Arup K. Chakraborty; Tong Ihn Lee...

I found this essay by Hedva to have some bits that I can strongly relate to as having ME. I’ll quote them down here. You’re welcome to read her full essay, which does include some political parts so I will ask we only stick to discussing the parts related to ME and Chronic Illness in this...

Abstract Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection can lead to postacute sequelae in multiple organ systems, but evidence is mostly limited to the first year postinfection. We built a cohort of 138,818 individuals with SARS-CoV-2 infection and 5,985,227 noninfected...

‘I am just a shadow of who I used to be’—Exploring existential loss of identity among people living with chronic conditions of Long COVID Chao Fang; Sarah Akhtar Baz; Laura Sheard; JD Carpentieri Identity loss and (re)construction forms a central debate in sociology of chronic illness. Living...

Here's a piece of research that presents an interesting perspective on chronic illness: "Being Sick Is a Full-Time Job": A Job Analysis of Managing a Chronic Illness https://onlinelibrary.wiley.com/doi/abs/10.1111/1475-6773.13726 Abstract Research Objective The purpose of this study was to...

FT This was being discussed on Newsnight last night and I was a bit concerned that they were pinning 'economic inactivity' largely on those with LTC. https://www.ft.com/content/c333a6d8-0a56-488c-aeb8-eeb1c05a34d2 although this report would seem to say otherwise (at least for those aged...

Abstract Objective Fatigue is a common, debilitating symptom experienced by individuals with chronic disease. Avoidance, or the act of evading unwanted experiences, is associated with fatigue across chronic disease samples. The current study sought to determine the strength of association...

https://www.nytimes.com/2021/10/23/opinion/lyme-disease-chronic-illness.html Ross Douthat is a columnist for The NY Times. He is both a political and religious conservative. He contracted Chronic Lyme disease and wrote a book about it (he has mostly recovered). This column is an excerpt from...

Alice Hattrick is an author who lives with ME/CFS and has recently published the book "Ill Feelings". Alice Hattrick was aged eight when their mother collapsed with mycoplasma pneumonia. The author – who prefers the gender-neutral pronoun “they” – found her on the kitchen floor at their home in...

Wade DT, Halligan PW. The biopsychosocial model of illness: a model whose time has come. Clin Rehabil. 2017 Aug;31(8):995-1004. doi: 10.1177/0269215517709890. PMID: 28730890. https://journals.sagepub.com/doi/10.1177/0269215517709890?icid=int.sj-full-text.similar-articles.2 Abstract The...

This brilliant essay from Electric Lit is a gem. It's affirming, easy to read, longish and mentions ME & Jen Brea. WARNING - I fell in love with the author. You just might too. https://electricliterature.com/why-doctors-like-me-need-to-read-chronic-illness-memoirs/ Why Doctors...

https://blogs.bmj.com/bmj/2021/09/20/to-speed-progress-in-treating-chronic-conditions-engage-patients-and-caregivers-as-research-partners/

This survey is part of a collaboration between Disability Rights UK and Chronic Illness Inclusion. The aim of this survey is to explore 1) Whether people with different energy-limiting health conditions and impairments are interested in working together on issues of social justice and...

This is the kind of issue that makes physicians roll their eyes, which is exactly why it is important to discuss as it can't be fixed from the outside. Technically with the backdrop of Long Covid but it's a general discussion...

https://the-slow-lane.com/2021/04/11/happy-with-my-lot/ "I seem to baffle some people, because I’m upbeat despite my situation; a situation that they deem to be the absolute pits. Some don’t know what to do with me because of my attitude. I don’t fit with their preconceived idea that people...

"The Department of Health and Social Care marked International Women’s Day this year with the launch of a consultation, asking women in England to share their experiences of the ‘gender health gap’. It’s a welcome gesture, but it must be backed up by action – and cold hard cash – particularly...

February 2021 In book: Handbook of Research Methods in Health Psychology (pp.228 - 241) Publisher: Routledge https://www.researchgate.net/publication/349319708_Chronic_Illness_The_Case_of_Chronic_Fatigue_Syndrome-Myalgic_Encephalomyelitis

https://www.theguardian.com/lifeandstyle/2021/feb/06/my-personal-lockdown-has-been-much-longer-on-chronic-illness-before-and-after-covid Not sure if this has been posted

https://link.springer.com/article/10.1007/s12369-020-00714-0 Published: 06 November 2020 Telepresence Robot Use for Children with Chronic Illness in Australian Schools: A Scoping Review and Thematic Analysis International Journal of Social Robotics (2020)Cite this article 9 Accesses...

https://youtu.be/fjWjb41bEOI