Genetic variants associated with chronic fatigue syndrome predict population-level fatigue severity and actigraphic measurements
Liu, Patrick Z; Raizen, David M; Skarke, Carsten; Brooks, Thomas G; Anafi, Ron C
STUDY OBJECTIVES
The diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome...
Full title: Use of passively collected actigraphy data to detect individual depressive symptoms in a clinical subpopulation and a general population.
The presentation of major depressive disorder (MDD) can vary widely due to its heterogeneity, including inter- and intraindividual symptom...
Someone suggested I split off a new thread from this other thread for discussing body position tracking specifically, which seems like a good idea.
Chris Armstrong from OMF brought up a device called activPAL a few months ago:
Some info on activPAL: It's a device that is attached to the...
Abstract
We measured physical activity after strenuous exercise in 20 women with chronic fatigue syndrome (CFS), compared to 20 sedentary healthy volunteers who exercised no more than once per week.
Activity was measured for 2 weeks using a portable waist-worn vertical accelerometer. After the...
Exercise does not cause post-exertional malaise in Veterans with Gulf War Illness: A randomized, controlled, dose–response, crossover study
Boruch; Barhorst; Rayne; Roberge; Brukardt; Leitel; Coe; Fleshner; Falvo; Cook; Lindheimer
ABSTRACT
Chronic multisymptom illnesses (CMI) such as Myalgic...
Abstract
Importance The severity of viral infections can vary widely, from asymptomatic cases to complications leading to hospitalizations and death. Milder cases, despite being more prevalent, often go undocumented, and their public health burden is not accurately estimated.
Objective To...
"Visible tracks your post-viral illness so you can manage your activity, avoid relapse and improve your health."
https://makevisible.co/
There's not a lot of detail on the website - it seems to be focused on heart rate monitoring and tracking of symptoms.
Abstract
Physical activity is defined as any bodily movement produced by skeletal muscles that results in energy expenditure. The benefits of physical activity for health maintenance have been well documented, especially in the prevention and management of chronic diseases. Therefore, accurate...
https://researchportal.bath.ac.uk/en/studentTheses/personal-informatics-systems-and-the-integration-of-data-from-nov
https://researchportal.bath.ac.uk/files/225871655/CillianDudleyThesis.pdf
Personal Informatics Systems and the Integration of Data from Novel Sensor Technologies
Cillian...
Full title:
Validation of the Severity of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Other Measures than History: Activity Bracelet, Cardiopulmonary Exercise Testing and a Validated Activity Questionnaire: SF-36
https://www.mdpi.com/2227-9032/8/3/273
Full Title: Accurate and Objective Determination of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Disease Severity with a Wearable Sensor
https://www.researchsquare.com/article/rs-48360/v1
Pre-print, not peer-reviewed.
Physical activity measures in patients with myalgic encephalomyelitis/chronic fatigue syndrome: correlations between peak oxygen consumption, the physical functioning scale of the SF-36 questionnaire, and the number of steps from an activity meter
Rowe PC, Campen...
I came across this on the Cochrane Central Database but cannot find any publication.
Original Title:
Optimalization of Cognitive Behavioral Therapy (CBT) for CFS patients in rehabilitation by means of ambulatory activity‐based feedback (ABF) ‐ Ambulatory activity‐based feedback (ABF)...
Interesting Bateman Horne Center video update of research on developing a wearable device for measuring hours of upright activity. Duration about 19 minutes.
Activity registration in ME/CFS
Would you like to be part of developing new methods for future clinical trials?
We are seeking participants for a study to test the activity device Fitbit Charge 3 for measurement of physical activity in patients with ME/CFS.
The study doesn't entail any...
Sandler, C; Llloyd, A Barry, B (2016), Fatigue Exacerbation by Interval or Continuous Exercise in Chronic Fatigue Syndrome, Medicine & Science in Sports & Exercise: October 2016 - Volume 48 - Issue 10 - p 1875–1885
doi: 10.1249/MSS.0000000000000983 /...
https://www.bbc.co.uk/news/uk-england-devon-49075253
BBC article showing that trackers are being looked at for ongoing monitoring of Parkinson’s patients
Surely developments like this have to make it much harder for any further research into ME even psychological to ignore using activity...
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