Ensuring the Voice of the Very Severely Affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patient Is Heard in Research—A Research Model
25% ME Group
Abstract
Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant patients who...
This thread has been renamed to include general discussion of pacing for people with severe ME/CFS as well as the leaflet linked in this first post.
25% ME Group pacing leaflet (among other things, it differentiates between CFS and ME)
https://25megroup.org/download/1796/?v=3222
It ends:
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25% ME Group stance on exercise
https://25megroup.org/25-me-group-stance-on-exercise
https://25megroup.org/wp-content/uploads/2020/08/25-ME-Group-stance-on-exercise.pdf
We are the 25% ME Group Charity, the only charity concerned specifically with the needs of those most severely affected by...
25% ME Group: 25 year anniversary of the 25% ME Group
https://25megroup.org/25-year-anniversary-of-the-25-me-group
by Simon Lawrence
This year marks the 25 year anniversary of the 25% ME Group, the only charity concerned specifically with the needs of the severely affected.
Further details –...
The 25% ME Group: The Crushing Physical Burden of ME
by Simon Lawrence of the 25% ME Group for those with severe ME on 14/08/2018
https://25megroup.org/the-crushing-physical-burden-of-me
There is clear evidence that ME is not the same as depression or any other psychiatric disorder. In 2015...
The 25% ME Group - for those with severe ME - has a newly designed website -
https://25megroup.org/
From the page "What is severe M.E.?" - https://25megroup.org/me
ME is a WHO classified neurological disease with multi-system dysfunction.
It is a physical disease that in its more...
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