20/08/2017
"The Medical Research Council invites proposals under its cross-board highlight notice in the area of Chronic Fatigue Syndrome and Myalgic Encephalomyelitis. Proposals should address the mechanisms underlying chronic changes related to CFS and ME in one or more of the theme areas...
Edit: As of 13 December, a recording and transcript are available here.
Full info here: http://www.twitlonger.com/show/n_1sqb52r
I'm a bit baffled about what number you should phone from the UK if you're not in one of those five big cities...
I think Peter White was due to speak at this (?)
But they seem to have had Per Fink.....
Per Fink
Head of Research and Chief Physician, The Research Clinic for Functional Disorders, Aarhus University Hospital
In 1999, Per Fink started The Research Clinic for Functional Disorders at Aarhus...
By Melanie Schickedanz
"In October, another study was published in the international online journal Plos One , which confirms that the cellular bioenergetics of patients with myalgic encephalomyelitis is impaired. Myalgic encephalomyelitis, ME for short, is often titled with the trivializing...
I got this leaflet about a post-Lyme/ME study in Marseille, France to take place on the 31st of December 2017. I am not Lyme literate at all, so I'm not sure what to make of this. It could be interesting to compare these two illnesses (although it is not clear at all which ME criteria they will...
What are your views on research progress in 2017?
Increased NIH funding, 3 Collaborative Centres established.
OMF finds something in the blood is stressing cells but we don't know what it is.
Mark Davis looking at possibility of autoimmunity.
Naviaux, suramin....not too exciting as suramin years...
Currently 12:35pm UK Time. If I can find an agenda for the day I'll post it here
https://www.actionforme.org.uk/news/watch-our-agm-live-tomorrow-morning-from-1025/
Watch our AGM live tomorrow morning from 10.25
November 15, 2017
Action for M.E.'s Annual General Meeting (AGM) will be held...
Main ME Association page on this. Note, it only includes part of the transcript - http://www.meassociation.org.uk/2017/11/understanding-the-neurobiology-of-fatigue-professor-julia-newton-standing-up-for-fatigue-16-november-2017/
Link to the full transcript -...
Interesting interview.
Edit: I wished Lipkin already was back in his lab to analyze the collected samples as of possible pathogens. He told that he is sure that they will find any present pathogen, or prints of them in the "immunological memory" that we all have. Can´t wait to get their results.
By David Tuller:
Trial By Error: What's Going on, BMJ Best Practice?
- Something’s weird over at BMJ Best Practice, a resource for clinical decision-making and an arm of the BMJ Publishing Group.
- As we noted in an update yesterday, the document we reviewed was dated July 31, 2017. Shortly...
Mini articles on:
Workwell to Collaborate with Cornell University's NIH ME/CFS Center
NIH Focus Group Research Update
Todd Davenport Educates Physical Therapists
http://myemail.constantcontact.com/2017-WORKWELL-WINTER-NEWSLETTER.html?soid=1114250523202&aid=92q0OzN90G8
A Novel Nutriceutical Treatment of Myalgic Encephalitis/Chronic Fatigue Syndrome (ME/CFS): “What it is and what it is not”
Frank Comhaire* Emeritus Professor at Department of Endocrinology and Metabolic Diseases, Ghent University Hospital, Belgium
Published date: September 30, 2017
Internal...
As the title says:
https://www.nice.org.uk/get-involved/join-a-committee/lay-member-persistent-pain-guideline-committee
Closing date: 5pm, Wednesday 22 November 2017
Time commitment: 2 years
We are looking for:
people with an understanding of persistent pain and the issues important to...
What it's like to travel again after 14 years of being housebound:
http://www.telegraph.co.uk/travel/destinations/europe/united-kingdom/scotland/articles/my-first-adventures-after-four-years-of-being-housebound/
This article is written by someone who was diagnosed with CFS (acute onset...
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