2017

  1. Sly Saint

    MRC invites proposals CFS and Myalgic Encephalomyelitis Aug 2017

    20/08/2017 "The Medical Research Council invites proposals under its cross-board highlight notice in the area of Chronic Fatigue Syndrome and Myalgic Encephalomyelitis. Proposals should address the mechanisms underlying chronic changes related to CFS and ME in one or more of the theme areas...
  2. Andy

    Forward ME Group Minutes – 17th October 2017

    Read the rest at http://www.meresearch.org.uk/news/forward-me-group-minutes-17th-october-2017/
  3. Sasha

    28 Nov 2017 | Telebriefing - updates on NIH attempts to advance ME/CFS research - TRANSCRIPT/RECORDING NOW AVAILABLE

    Edit: As of 13 December, a recording and transcript are available here. Full info here: http://www.twitlonger.com/show/n_1sqb52r I'm a bit baffled about what number you should phone from the UK if you're not in one of those five big cities...
  4. Cheshire

    Tuller/ Trial By Error: Hey Bristol, Where Is My Cease and Desist Letter?

    http://www.virology.ws/2017/11/22/trial-by-error-hey-bristol-where-is-my-cease-and-desist-letter/
  5. Sasha

    (Research) reasons to be cheerful

    ...in the light of... you know... Here's @Simon M's - let's pile those reasons on...
  6. Andy

    Decreased connectivity and increased BOLD complexity in the default mode network in individuals with CFS, 2018, Shan et al

    Paywalled at http://online.liebertpub.com/doi/10.1089/brain.2017.0549 Abstract only at https://www.ncbi.nlm.nih.gov/pubmed/29152994
  7. Sly Saint

    Per Fink - speaker at Swiss Re Ins Summit 15 - 17 Nov 2017

    I think Peter White was due to speak at this (?) But they seem to have had Per Fink..... Per Fink Head of Research and Chief Physician, The Research Clinic for Functional Disorders, Aarhus University Hospital In 1999, Per Fink started The Research Clinic for Functional Disorders at Aarhus...
  8. Sly Saint

    Huffington Post Germany article on Ron Davis/OMF research

    By Melanie Schickedanz "In October, another study was published in the international online journal Plos One , which confirms that the cellular bioenergetics of patients with myalgic encephalomyelitis is impaired. Myalgic encephalomyelitis, ME for short, is often titled with the trivializing...
  9. Andy

    Trial By Error: My Brief Encounter with Professor Crawley

    http://www.virology.ws/2017/11/20/trial-by-error-my-brief-encounter-with-professor-crawley/ ETA
  10. Effi

    post-Lyme vs ME: comparative study (France - dec 2017)

    I got this leaflet about a post-Lyme/ME study in Marseille, France to take place on the 31st of December 2017. I am not Lyme literate at all, so I'm not sure what to make of this. It could be interesting to compare these two illnesses (although it is not clear at all which ME criteria they will...
  11. S

    Research since January 2017

    What are your views on research progress in 2017? Increased NIH funding, 3 Collaborative Centres established. OMF finds something in the blood is stressing cells but we don't know what it is. Mark Davis looking at possibility of autoimmunity. Naviaux, suramin....not too exciting as suramin years...
  12. Sasha

    Canadian medical & nursing students' survey responses following Unrest screening

    Interesting! https://www.mefm.bc.ca/single-post/2017/11/06/Survey-Responses-from-UBC-TIMEFORUNREST-Screening Particularly:
  13. ukxmrv

    Action for ME AGM (UK) is live streaming now

    Currently 12:35pm UK Time. If I can find an agenda for the day I'll post it here https://www.actionforme.org.uk/news/watch-our-agm-live-tomorrow-morning-from-1025/ Watch our AGM live tomorrow morning from 10.25 November 15, 2017 Action for M.E.'s Annual General Meeting (AGM) will be held...
  14. Andy

    Transcript of Professor Julia Newton's ‘Standing up for fatigue’ talk at the 'Understanding the neurobiology of fatigue' conference Nov 2017

    Main ME Association page on this. Note, it only includes part of the transcript - http://www.meassociation.org.uk/2017/11/understanding-the-neurobiology-of-fatigue-professor-julia-newton-standing-up-for-fatigue-16-november-2017/ Link to the full transcript -...
  15. H

    Dr. Zahler Nahle interviews Dr. Ian Lipkin - Discovery Forum 2017

    Interesting interview. Edit: I wished Lipkin already was back in his lab to analyze the collected samples as of possible pathogens. He told that he is sure that they will find any present pathogen, or prints of them in the "immunological memory" that we all have. Can´t wait to get their results.
  16. Kalliope

    Trial By Error: What's Going On, BMJ Best Practice?

    By David Tuller: Trial By Error: What's Going on, BMJ Best Practice? - Something’s weird over at BMJ Best Practice, a resource for clinical decision-making and an arm of the BMJ Publishing Group. - As we noted in an update yesterday, the document we reviewed was dated July 31, 2017. Shortly...
  17. Andy

    The Workwell Pulse - WINTER 2017 WORKWELL NEWSLETTER

    Mini articles on: Workwell to Collaborate with Cornell University's NIH ME/CFS Center NIH Focus Group Research Update Todd Davenport Educates Physical Therapists http://myemail.constantcontact.com/2017-WORKWELL-WINTER-NEWSLETTER.html?soid=1114250523202&aid=92q0OzN90G8
  18. Trish

    A Novel Nutriceutical Treatment of ME/CFS, 2017, Comhaire

    A Novel Nutriceutical Treatment of Myalgic Encephalitis/Chronic Fatigue Syndrome (ME/CFS): “What it is and what it is not” Frank Comhaire* Emeritus Professor at Department of Endocrinology and Metabolic Diseases, Ghent University Hospital, Belgium Published date: September 30, 2017 Internal...
  19. Esther12

    NICE looking for lay member for persistant pain guideline committee - closing date 22nd November

    As the title says: https://www.nice.org.uk/get-involved/join-a-committee/lay-member-persistent-pain-guideline-committee Closing date: 5pm, Wednesday 22 November 2017 Time commitment: 2 years We are looking for: people with an understanding of persistent pain and the issues important to...
  20. Woolie

    What it's like to travel again after 14 years of being housebound (Telegraph article)

    What it's like to travel again after 14 years of being housebound: http://www.telegraph.co.uk/travel/destinations/europe/united-kingdom/scotland/articles/my-first-adventures-after-four-years-of-being-housebound/ This article is written by someone who was diagnosed with CFS (acute onset...
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