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  1. kikala
    Post

    'You'll know you're getting better when you start getting colds & flu again' - anyone else come across this?

    I’ve absolutely experienced this. I’ve had ME since 1990. The first several years were quite bad, and I didn’t have any colds or flu during that...
    Post by: kikala, Nov 26, 2024 in forum: General and other signs and symptoms
  2. kikala
    Post

    Have you limited your activity more than you needed to?

    Agree with everything people have said here. I can’t imagine “doing too little” – the endless struggle is against doing too much. Especially when...
    Post by: kikala, Nov 26, 2024 in forum: Monitoring and pacing
  3. kikala
    Post

    Was there a gap between trigger and onset of your ME/CFS?

    This is a fascinating question! Beginning 7/26/90 I had a vicious GI bug that landed me in the hospital for a week. Intense diarrhea for 8 days...
    Post by: kikala, Oct 11, 2024 in forum: Epidemiology (incidence, prevalence, prognosis)
  4. kikala
    Post

    Ed Yong Articles on Long Covid & ME/CFS

    The Ed Yong piece is probably the best opinion piece I have ever seen about ME/CFS. Here's a link for those who don't have a subscription:...
    Post by: kikala, Dec 11, 2023 in forum: General ME/CFS news
  5. kikala
    Post

    PEM: Swimming compared to other activities?

    I'm too sick to swim at all now, but for many years I could tolerate swimming better than any other aerobic activity. Swimming for 10 minutes or...
    Post by: kikala, Jan 18, 2021 in forum: Post-Exertional malaise and fatigue
  6. kikala
    Thread

    Article: When the Chronically Ill Go into Remission: Filmmaker Jennifer Brea’s Life After “Unrest”

    Excellent article in the Los Angeles Review of Books about the trauma of illness and the double edge of remission. Written by Megan Moodie, who...
    Thread by: kikala, Jul 18, 2020, 2 replies, in forum: General ME/CFS news
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