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  1. rogerblack
    Post

    Post-exertional symptoms distinguish myalgic encephalomyelitis/chronic fatigue syndrome subjects from healthy controls, 2020, Mateo et al

    "This paper also sheds light on the possible risks of a 2-day CPET. It does not appear that patients or research subjects suffer permanent or...
    Post by: rogerblack, Nov 25, 2022 in forum: ME/CFS research
  2. rogerblack
    Post

    Long Covid epidemiology (prevalence, incidence, recovery rates)

    The number of people in the UK with severe post-covid fatigue right now likely exceeds the generally accepted ~200K number for those with CFS. If...
    Post by: rogerblack, Apr 1, 2021 in forum: Long Covid news
  3. rogerblack
    Post

    Physical, cognitive and mental health impacts of COVID-19 following hospitalisation: a multi-centre prospective cohort study, 2021, Evans et al.

    https://www.bmj.com/content/372/bmj.n829/rapid-responses Response to BMJ article. The 5 day old email to the three apparent lead authors has not...
    Post by: rogerblack, Mar 30, 2021 in forum: Long Covid research
  4. rogerblack
    Post

    BMJ: Rapid response to 'Updated NICE guidance on CFS', 2021, Jason Busse et al, Co-chair and members of the GRADE working group

    I would argue that employment data and benefits data is a pretty objective measure of actual activity. Of course, even though this was STRONGLY...
    Post by: rogerblack, Mar 30, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  5. rogerblack
    Post

    Physical, cognitive and mental health impacts of COVID-19 following hospitalisation: a multi-centre prospective cohort study, 2021, Evans et al.

    I've currently been commenting on twitter and in other places, and mailing the involved professors about the severe problems (shared with many CFS...
    Post by: rogerblack, Mar 25, 2021 in forum: Long Covid research
  6. rogerblack
    Post

    The evidence base for physiotherapy in myalgic encephalomyelitis/chronic fatigue syndrome when considering PEM: a systematic review (2020) Wormgoor

    I note the very important and highly misleading line ' Currently, there is no scientific evidence when it comes to effective physiotherapy for ME...
    Post by: rogerblack, Jan 5, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. rogerblack
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I am unsure what basis I was referred, but perhaps a decade before that I underwent what on reflection was an CPET and was diagnosed by two...
    Post by: rogerblack, Nov 30, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  8. rogerblack
    Post

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Apologies for the slight off topic. Is there an archive for any guidance prior to the 2007 guidelines? Wondering if there is a timeline of what...
    Post by: rogerblack, Nov 30, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  9. rogerblack
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    A point I have not seen raised in this thread (or not understood if it has been made). It is important for any mention of CBT in the document to...
    Post by: rogerblack, Nov 10, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  10. rogerblack
    Post

    BPS attempts at psychologizing Long Covid

    Same issue, different disease. Medium-term effects of SARS-CoV-2 infection on multiple vital organs, exercise capacity, cognition, quality of...
    Post by: rogerblack, Oct 27, 2020 in forum: Psychosomatic news - ME/CFS and Long Covid
  11. rogerblack
    Post

    UK - Resources for help getting food during quarantine and other supermarket related problems

    On a technical point, have the carrier bag regulations been waived during this time? Otherwise, the delivery in bags may be costing considerably...
    Post by: rogerblack, Aug 19, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  12. rogerblack
    Post

    Pacing - what do you do/how would you describe it?

    My #1 takeaway is 'fuck normal'. - if something helps you, it doesn't matter. However silly it looks to others, or however much you don't want it...
    Post by: rogerblack, Aug 1, 2020 in forum: Monitoring and pacing
  13. rogerblack
    Post

    Pacing - what do you do/how would you describe it?

    I am tempted to have two cards for when I go out with A) Brief explanation of CFS, and problems I have. B) Legal threats to the organisation...
    Post by: rogerblack, Aug 1, 2020 in forum: Monitoring and pacing
  14. rogerblack
    Thread

    (2009) Cardiovascular Dysfunction with Low Cardiac Output Due to a Small Heart in Patients with Chronic Fatigue Syndrome, Miwa et al

    https://www.jstage.jst.go.jp/article/internalmedicine/48/21/48_21_1849/_article - free PDF at...
    Thread by: rogerblack, Jul 29, 2020, 0 replies, in forum: ME/CFS research
  15. rogerblack
    Thread

    Evidence for cardiovascular dysfunction

    A note for any of us who notice cardiac symptoms being called out as 'serious' and caused by covid. It may be worth calling attentions to these...
    Thread by: rogerblack, Jul 29, 2020, 4 replies, in forum: Cardiovascular and exercise physiology (CPET)
  16. rogerblack
    Post

    UK - NHS England online tool and clinics for long Covid.

    I should have perhaps elaborated on the original post. My worries are the entire tone of this piece is 'everyone will get better' - and is...
    Post by: rogerblack, Jul 29, 2020 in forum: Long Covid news
  17. rogerblack
    Post

    UK - NHS England online tool and clinics for long Covid.

    Merged thread Extremely dangerous NHS exercise guidelines post covid. https://www.yourcovidrecovery.nhs.uk/your-wellbeing/getting-moving-again/...
    Post by: rogerblack, Jul 29, 2020 in forum: Long Covid news
  18. rogerblack
    Thread

    COVID19 followup studies - cautions to researchers on scale accuracy/...

    I have not seen (through a brief search) any mention of an effort to bring together what we've learned over the decades about how to measure, or...
    Thread by: rogerblack, Jul 7, 2020, 1 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  19. rogerblack
    Post

    How to explain the 'fatigue' of ME/CFS to non-sufferers - comparisons they could understand

    'I can do anything, as long as it only takes 30 seconds and I've been resting in bed and not thinking too hard the days before'.
    Post by: rogerblack, Dec 20, 2019 in forum: Post-Exertional malaise and fatigue
  20. rogerblack
    Post

    Use your Amazon Smile to fundraise while shopping

    Merged thread Amazon Smile is a program to donate a small portion of the price of stuff you buy on Amazon to charity you nominate. This only...
    Post by: rogerblack, Dec 12, 2019 in forum: Fundraising
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