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  1. Mij

    Orthostatic intolerance

    The sweating/hot flashes segment on how it relates to OI was interesting.
  2. Mij

    Covid-19 vaccination experiences

    I was given 2 Pfizer jabs at home.
  3. Mij

    Scientists provide new insights into the citric acid cycle

    Will global warming reverse my citric acid cycle? It's kind of stuck right now.
  4. Mij

    Persistent clotting protein pathology in Long COVID/PASC is accompanied by increased levels of antiplasmin, 2021, Pretorius et al

    @Kitty I also had an ISAC (Immune System Activation of Coagulation) panel done which is most likely a 'version' of APS. This is recycling pet theories all over again.
  5. Mij

    Persistent clotting protein pathology in Long COVID/PASC is accompanied by increased levels of antiplasmin, 2021, Pretorius et al

    These tests were done through David Berg HEMEX labs. I had this test done and so did many others w ME/CFS back in the late nineties. None of us had antiphospholipid antibody syndrome. None.
  6. Mij

    Scientists provide new insights into the citric acid cycle

    Researchers have new insights into the citric acid cycle: Certain bacteria can use this central metabolic pathway 'backwards', but to do so they must have very high concentrations of the enzyme citrate synthase and of carbon dioxide. This pathway may be a relic from the early development of...
  7. Mij

    Orthostatic Cognitive Dysfunction in Postural Tachycardia Syndrome After Rapid Water Drinking, 2019, Belén Rodriguez et al

    @DokaGirl We have a heated pool in my building, and early on in my illness I used to go down and walk around in the low end or sit by the jets to help increase circulation. The pool was comfortably heated, not hot, but I felt so weak after I could barely walk, and this was during the...
  8. Mij

    Pain-related post-exertional malaise in (ME/CFS) and Fibromyalgia: A systematic review and three-level meta-analysis, 2021, Barhorst et al

    @shak8 I wonder if this is the difference between FM pain and ME/CFS pain? I don't experience pain at all, but I have communicated with pwFM and pwME regarding pain, pwFM can get away at times w/o pain after exercise, but pwME did not.
  9. Mij

    Orthostatic Cognitive Dysfunction in Postural Tachycardia Syndrome After Rapid Water Drinking, 2019, Belén Rodriguez et al

    My heart rate went up when I was in a heated pool 'noodling around'. It took me 2 days to recover.
  10. Mij

    Orthostatic Cognitive Dysfunction in Postural Tachycardia Syndrome After Rapid Water Drinking, 2019, Belén Rodriguez et al

    I've read that abnormalities of sweating is not uncommon for people with dysautonomia. When I'm in PEM I feel hot/dehydrated but I'm unable to sweat. I was thinking that frequent urination might indicate low level of electrolytes or similar symptoms to diabetes insipidus where extreme thirst...
  11. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The WHO has released a document outlining a formal definition for long COVID, which it now calls “post COVID-19 condition.” See this thread: https://www.s4me.info/threads/who-a-clinical-case-definition-of-post-covid-19-condition-by-a-delphi-consensus.22688/
  12. Mij

    Orthostatic Cognitive Dysfunction in Postural Tachycardia Syndrome After Rapid Water Drinking, 2019, Belén Rodriguez et al

    Abstract Background: Postural tachycardia syndrome (POTS) is a form of autonomic dysregulation and is characterized by an excessive heart rate (HR) increment upon the upright body position while blood pressure is maintained. Patients experience typical symptoms of orthostatic intolerance such as...
  13. Mij

    Safety and efficacy of ampreloxetine in symptomatic neurogenic orthostatic hypotension, 2021, Horacio Kaufmann et al

    Phase 2 trial: Abstract Purpose In neurogenic orthostatic hypotension, blood pressure falls when upright owing to impaired release of norepinephrine, leading to dizziness. Ampreloxetine, a selective norepinephrine reuptake inhibitor, increases circulating norepinephrine levels. This study...
  14. Mij

    Salt: The paradoxical philosopher's stone of autonomic medicine

    New paper on Salt: The paradoxical philosopher's stone of autonomic medicine - to expand intravascular volume or to raise blood pressure. Highlights Salt has profoundly shaped human history, including diet and medicine. • Salt improves orthostatic tolerance but also increases risk of...
  15. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I've been here a lot longer and I use this one now from banging my head :emoji_head_bandage:
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