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  1. JemPD

    (Not a recommendation) Alastair Miller on CFS

    Just to say that Colin Barton definitely posted this on the MEA's facebook page on 28th December. I deliberately ignored it because, having posted EC's TEDx talk there on 24th Dec (-Merry Christmas!) i felt Barton was likely being provocative & trying to get a rise out of people, or get...
  2. JemPD

    What are the 'missing' research papers based on existing data that we wish scientists would write about ME/CFS?

    I cant find it. I'm sure i saw it but it was old & some yrs ago that i saw it. Perhaps i've gone bonkers & it was by someone else, but i really think it was either White, Wessely or Sharpe, because i remember thinking how they were not advertising that particular study as it didnt say what they...
  3. JemPD

    What are the 'missing' research papers based on existing data that we wish scientists would write about ME/CFS?

    This is a good idea Sasha. Wasn't there a paper by White that actually contradicted the 'deconditioning' theory? I'll try to find it.
  4. JemPD

    Info for CPN (request for links pls)

    Oh! I found it, the open letter, it's the one to Psychological Medicine about the recovery paper from PACE :) for anyone else who's interested it's here http://www.virology.ws/2017/03/23/an-open-letter-to-psychological-medicine-again/ "That the editors of Psychological Medicine do not grasp...
  5. JemPD

    Info for CPN (request for links pls)

    Thanks so much Graham. That doesn't have all 102 signatories listed that eventually ended up on that letters, or maybe it was a different letter, it's all a blur to me now, but & i especially wanted her to see all those signatories because there is at least 1 psychiatrist working in a UK NHS...
  6. JemPD

    Info for CPN (request for links pls)

    Hi all, I wonder if someone can help me out pls.... 8yrs after ME onset I got PTSD. I am working with a new community psych nurse to give me support for it. She has minimal knowledge about ME & has expressed an interest in finding out a bit about it - she was asking me what treatment was...
  7. JemPD

    Spoon theory

    @MsUnderstood I do like your car analogy. Personally i find the £ analogy the best too. Because most people i know have been broke at some point & understand the notion of having to watch every penny the way i watch all my exertion - so when i explain that i have £10 to spend per wk Whereas...
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