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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I hope someone remembers that the important thing is to withhold a diagnosis so that the patient does not become too attached to it. If necessary NYD-N should do the trick.
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    @rvallee Aren't you forgetting something? This all counts for nothing In addition, we believe that understanding of the postviral fatigue syndrome has been hindered by doctors who suffer from the condition also researching it. Though medical training affords insight into the subjective effects...
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    Patient Safety Commissioner proposal - First Do No Harm IMMDSReview, 2020, Cumberlege et al

    My memory may be playing tricks but was there not , a few years ago, a study into the effects of counselling on post disaster victims which found that those who received the counselling fared worse than those who did not. The counselling somehow fixed (not in the "mended" sense) the trauma...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    A couple of things strike me about the interview. It seems much easier now to describe the condition now that the descriptive vocabulary is available, even if far from perfect. Forty years ago it was a nightmare trying to find words when no-one, or no-one you knew, knew of the possible existence...
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    NICE Statement about graded exercise therapy in the context of COVID-19

    What is the evidence to suggest that post-covid fatigue, as opposed to the symptoms specific to covid, differs from post virus fatigue after other viruses?
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    Judy Mikovits

    I can think of no evidence to suggest, or reason to suppose, that being broken by a virus would have the same outcome as being broken by the legal system. The US has possibly the best justice money can buy. There were quite recently reports of a court judgment against Mikovitz. There seemed...
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    Judy Mikovits

    I'm not sure. Some have gained fame and fortune from alleged laboratory contamination. Circumstances may be kind or unkind.
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    Judy Mikovits

    I sometimes wish that people would have greater understanding and tolerance for Mikovits. For a number of years she has clearly had "difficulties", and displayed questionable judgment. Given what she was put through this is unsurprising. She was caught up in a series of events for which others...
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    Pacing - what do you do/how would you describe it?

    I have recently been reading a lot of the early advice. Pacing was never intended as an excuse for idling the rest of your life away. It recommended gradual increases in activity, just as GET does. The fundamental distinction was the reaction upon exacerbation of symptoms. Pacing said stop and...
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    NICE Statement about graded exercise therapy in the context of COVID-19

    @rvallee do you know where that 1988 MEAction campaign quote came from. @Lucibee and I have been looking for the original quote. It looks to have been quoted unreasonably by you know who.
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    NICE Statement about graded exercise therapy in the context of COVID-19

    What has become apparent is that the "new" GET treatment is merely the old treatment for Neurasthenia via Effort Syndrome. You can cure yourself of effort syndrome if you really want to. Or so it was said. What is surprising is that this was not made explicit.
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    One does wonder whether Fauci might "revisit" his part in all this from 1988 onwards.
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    Patients’ experiences with fluctuations in persistent physical symptoms: a qualitative study - Barends et al July 2020

    One needs to ask , though, whether they have gained control over symptoms or symptoms have gained control over them. EDIT you don't gain control over symptoms by surrendering to them, but the alternatives may be far worse.
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    Coronavirus - worldwide spread and control

    We'll brook no criticism of the Senescent And Geriatric Elimination advisers.
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    NICE Statement about graded exercise therapy in the context of COVID-19

    I wonder whether any Post-covid sufferers have yet started to understand the use of the word "post". I bet they all think it's aetiological. Sometimes it can take years to understand that it may merely be describing correlation and not causation. Some of them may have had the benefit of a...
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    Patients’ experiences with fluctuations in persistent physical symptoms: a qualitative study - Barends et al July 2020

    Perfectly right and proper. Someone has to worry about the unemployment figures at this time.
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    NICE Statement about graded exercise therapy in the context of COVID-19

    The main problem with that is in understanding the use of the term "coherent". We would probably like to see a"logical and consistent" service, provided it followed the right logic and consistency. Would we want to see a "forming a unified whole" service of the wrong sort?
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    NICE Statement about graded exercise therapy in the context of COVID-19

    The recommendations on graded exercise therapy in CG53 only apply to people with a diagnosis of ME/CFS as part of specialist care, and CG53 is clear that this should be part of an individualised, person-centred programme of care, with GET only recommended for people with mild to moderate...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    So we believe that Fauci says that post-covid syndrome is highly suggestive of ME. Do we now know what he considers ME to be?
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