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My letter to the Science Media Centre about BMJ Study I have sent the following e-mail to Edward Sykes, the head of mental health and neuroscience at the Science Media Centre. The e-mail concerns the Lightning Process study published last year in Archives of Disease in Childhood. The SMC...

Very good article about young ME patients and their meeting with the health care system. This was written by psychologist Ketil Jakobsen before Christmas last year in the Journal for the Norwegian Psychology Association. The text hasn't been available online until now. Jakobsen has many years...

The director of the Norwegian ME-documentary that was recently aired on national television with 300 000 viewers, initiated a fundraiser on Facebook for 300 000 NOK (a NOK for each viewer). He reached his goal within two days and now aims for 500 000 NOK (61 000 USD/ 46 000 GBP). He is very...

It is originally a Norwegian article that now has been translated to Danish. The original article was discussed here. It is such a pity that Scandinavian journalism on ME and research has not gotten further :banghead: At least the biopsychosocio-side wasn't interviewed alone..

My Letter to MP Monaghan About BMJ Studies This morning, I sent an e-mail about BMJ to Scottish National Party MP Carol Monaghan. MP Monaghan, a science teacher by profession, has a keen interest in research accountability as well as in the plight of ME/CFS patients. In February, she organized...

This post and some others following have been moved from another thread. A bit disturbing Facebook post from Invest in ME just now... Apparently a debate in parliament is happening today with Carol Monaghan picking up the thread from her previous debate. However, the document from which she is...

BMJ Still "Looking Into Lightning Process Paper" Tuller has received via CC an e-mail from dr. Brown, editor of Archives of Disease in Childhood, stating that they had previously acknowledged receipt of his complaints, are looking into them and will respond fully when ready. Tuller has...

Yes! There it was. Thank you, @searcher - very fitting nick, by the way! ETA: I was looking for the title "A reboot for chronic fatigue syndrome research", but the printed version had the title: "The invisible disability"

That's fantastic! Shouldn't it be listed here MJA Awards shortlists announced - or is it just me who can't find it or have misunderstood something?

New ME-article from the Swedish newspaper Aftonbladet. About ME patient Claudia, whose welfare support has stopped. Aftonbladet: Claudia har ME/CFS - nu dras hennes sjukpenning in Yandex translate: Claudia has ME/CFS - now her welfare support stops In march, the Insurance agency said that she...

Any politicians attending? What happened with Jeremy Corbyn? ETA: Any journalists?

And a not completely unrelated tweet..

Merged thread Spotted this in a tweet by Derya Unutmaz today, and don't think the article has been shared here? Maya Dusenbery: "Everybody was telling me there was nothing wrong" Women are more likely to wait longer for a health diagnosis and to be told it’s ‘all in their heads’. That can be...

The Swedish newspaper Aftonbladet has an article today about a 20% increased allocation to the two ME-clinics in Stockholm. Aftonbladet: Stockholm satser mer pengar på ME-vård This is good news. One of the clinics, Stora Sköndal, recently had to stop receiving new patients because of long...

My 2011 NY Times Exchange With the PACE PIs When the PACE trial was published in early 2011, my New York Times editor sent it to me, along with the press release. As a non-staff contributor to the Times, I had started covering the debate over the mouse retrovirus hypothesis and science, but I’d...

NICE's Consideration of the Lightning Process Here’s an e-mail I sent last Thursday to two key members of the NICE guidance executive, Sir Andrew Dillon and Professor Mark Baker. I also cc’d several stakeholders as well as Fiona Godlee, the editor-in-chief of The BMJ and editorial director of...

I completely agree. I am not a bit fan of our current government in general, but our prime minister REALLY do care about ME-patients, she actually knows a bit about the disease and is very eager on research in general. Now as we are looking for other incomes than petroleum and have lots of...

Over 300 000 saw the documentary about ME on television on Wednesday. :jawdrop: