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Thanks for replying again @dave30th -- I realize we had discussed this repeatedly before the correction was added (see e.g. post above ) "We did not have capacity to check school attendance using school records" I wonder what people who aren't aware of the criticism and now read the editor's...

Excellent -- yes that's it. Many thanks!

I now found one of @dave30th's very helpful replies that answers also my questions about the SMILE trial:

Had a look now at the corrected version -- Will have to reword the paragraph as the corrected paper now acknowledges: "We did not have capacity to check school attendance using school records, but this could have provided an objective outcome." And then they go on: "Further unpublished work...

I remember that bit and also some other issues. Would this work: "Explicitly mentioning the verifiability of seemingly objective end-points here seems important, as one large study of the benefits of an alternative medical therapy in children and adolescents (SMILE), for example, included...

As I don't feel comfortable to post all questions in the fully public area, I now will post specific asks for help and feedback on single draft paragraphs of my comment in the advocacy planning subforum (members only).

@cassava7 @Dolphin -- see above post.

Could anyone check if the following paragraph is correct? I would like to use it for a comment on the IQWiG report plan -- comment is due by Wednesday and there's a lot of work until then, so any help much appreciated. That's my draft (translated from German) : Edit -- go to: Explicitly...

Thanks. Anyway, a lot of extra work and extra bytes.

I find it strange that the IQWiG report plan only links to the old NICE guidelines not to the draft.

OK, I deleted my post on the NICE thread. A pragmatic question: In the comment form it says that for all references we use that aren't already included in the report plan, we need to provide the full texts. Die Volltexte der in der Stellungnahme zitierten Literatur, die von direkter Relevanz...

4.2 Evidence mapping of treatment options relevant to care. Second, the report includes an evidence mapping (i.e., an overview of the data) of treatment options relevant to the care of patients with ME/CFS with respect to selected patient-relevant outcomes. – Patient population: ME/CFS...

4. Methods 4.1 Current state of knowledge . First, the current state of knowledge on ME/CFS is systematically reviewed. This includes a presentation of results on the following topics: a) Complaints / symptoms (including description of relevant symptoms, severity and burden of the disease...

It’s quite a challenge that the comment has to be in German and the discussion here has to be in English – but I’ll try. Text in English has been automatically translated by deepl (reduced structure) or google translate (table of contents). The report plan is about the scope (topics) of the...

The Institute for Quality and Efficiency in Healthcare (IQWiG) in Germany seems to like this. They used this Cochrane review in their Health Information on RA: https://www.s4me.info/threads/germany-iqwig-report-to-government-on-me-cfs-feedback-on-report-plan-due-11-aug-2021.21266/ (The google...

Thread on the Cochrane Review on non-pharmacological interventions in RA (2013), co-authored by Chalder and used as evidence for the IQWiG health information mentioned above...

Cramp F, Hewlett S, Almeida C, Kirwan JR, Choy EH, Chalder T et al. Non-pharmacological interventions for fatigue in rheumatoid arthritis. Cochrane Database Syst Rev 2013; (8): CD008322...

Clinical trials and reviews used by the Institute for Quality and Efficiency in Healthcare (IQWiG) in Germany for their Health Information on fatigue in RA: (Includes qualitative studies.) Sources for the section "Living and dealing with fatigue" (in RA) Cramp F, Hewlett S, Almeida C, Kirwan...

Which exercise and behavioural interventions show most promise for treating fatigue in multiple sclerosis? A network meta-analysis (2021) Harrison et al...

There is a thread that tries to collect adequately controlled clinical trials and reviews on therapist-delivered/ non-drug interventions for illnesses and symptoms that don't have biomarkers yet here. Thought it could be also helpful to have a meta-thread collecting both well done and badly...