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My MP (Scott Mann) won't be able to make it: "Many thanks for taking the time to contact Scott regarding the ME Debate on January 24th. Unfortunately, due to prior commitments, Scott is unable to attend the event. However, he will ensure to request a briefing. In the meantime you may be...

(apparently) The text of tomorrow's ME debate will be available here, https://hansard.parliament.uk/search?startDate=2019-01-24&endDate=2019-01-24&searchTerm=%28treatment%20of%20ME%29

Station: UK House of Commons Date: January 24, 2019 Time: 9:30 UTC or later WebTV: https://parliamentlive.tv/Event/Index/d7401af9-0971-4d2c-a875-a9170495bd8b Item: Backbench Business - Debate on a Motion relating to appropriate ME Treatment

https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-01-21/210666/ Emma Reynolds To ask the Secretary of State for Work and Pensions, whether she has plans to update the training module on Fibromyalgia issued by her Department on 18...

"Lay Summery" Not quite right!

I just copied the email I received. Shall I remove the Nature link?

Source: Scientific Reports Preprint Date: January 15, 2019 URL: http://sro.sussex.ac.uk/81281/ Ref: http://www.nature.com/srep/ MtDNA population variation in Myalgic encephalomyelitis/Chronic fatigue syndrome in two populations: A study of mildly deleterious variants...

I've sent the further info: "but due to the mental haze inflicted by ME forgot to say which day the debate was. It's on 24th January. I'm not yet sure of the time." and also added a link to the document here...

Ticks are not insects. They have 8 legs, and are related to spiders: https://www.lymediseaseaction.org.uk/about-ticks/

I've sent the following to my MP via https://act.meaction.net/page/7340/action/1 "As previously stated to you, my life has been wrecked by ME since 1995. Luckily I have not been subjected to the appallingly-dangerous and ill-advised Graded Exercise Therapy, or Cognitive Behaviour Therapy, but...

https://www.bbc.co.uk/news/uk-england-derbyshire-46880547 A debate has been held in parliament about a chronic pain condition after a petition attracted more than 115,000 signatures. Toby Perkins, MP for Chesterfield, organised the debate along with constituent and fibromyalgia campaigner...

I don't know if this is important or not: Source: Whittemore Peterson Institute Date: September 25, 2018 January 10, 2019 URL: http://nvcbr.org/2018/09/25/nvcbr-latest-news/ http://www.wpinstitute.org/2018/09/25/nvcbr-latest-news/ NVCBR Latest News ----------------- We are pleased to...

I support your letter too, @Trish.

This seems to be a thesis by the same main author: Source: King's College London Date: February 2017, September 21, 2017, online Januari 11, 2019 URL: https://ethos.bl.uk/OrderDetails.do?did=5&uin=uk.bl.ethos.762335...

Secretary of State for Work and Pensions Amber Rudd said: Everyone, no matter what their background is, should have the opportunity to thrive in the workplace. I see. So retired people? People with almost-zero brain activity? Children?

I have had it - when my ears were rather blocked - but it went away - when I finally unblocked my ears, I think.

(I don't understand why it says 'The Telegraph' when it seems to be a Yahoo article, but I'm just copying what came) Source: The Telegraph Datd: January 5, 2019 Author: Simon Briggs URL: https://uk.sports.yahoo.com/news/katie-boulter-exclusive-interview-apos-080000913.html Katie Boulter...

Source: Frontiers in Pediatrics Preprint Date: December 31, 2018 URL: https://www.frontiersin.org/articles/10.3389/fped.2018.00435/abstract The importance of accurate diagnosis of ME/CFS in children and adolescents: A commentary ----------------------------------------------------------...

Do you mean BIBO?

I believe that most people with ME/CFS do feel pain more easily, but a minority (including me) don't.