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@Mike Godwin continued (apologies if I’ve got these tweets in wrong order): “I think humility is good for everyone, generally speaking. There are many medical conditions whose aetiology is mysterious or at least ambiguous. Symptoms, and strategies for treating the symptoms, may vary among...

I was impressed that you remembered! Hope you enjoyed it. Meanwhile, Mike Godwin’s responses are encouraging:

Seems he’s also an old pal of Omar! He’s now been sent dozens of links (including those to Steve Lubet’s excellent open letter to SW) and appears to be receptive:

Would it not be an approximately even chance if you know about 100 people?

Thanks. The bit I had not understood was more basic but having read your answer and re-read the blog I think I understand: This study suggests people with ME are more likely to have valine instead of aspartic acid in a particular part of the P4HA1 protein. However, other species (such as the...

This is a repetition of what I’ve just written on the blog (awaiting moderation): Many thanks for this blog, @Simon M n and @Chris Ponting. Very interesting and informative. Some questions: 1) I’ve just had a quick look at the UK Biobank website but I couldn’t see how patients were recruited...

I see they are recruiting for a double blind trial of Q10 + NADH in Barcelona: https://clinicaltrials.gov/ct2/show/NCT03186027

Is this quote attributable to anyone? I would love to be able to quote this. The song has had quite a few views but it seems to have struggled to get beyond the ME community bubble. Most to the people who have commented, liked or shared it seem to have been people with ME. Where Jen has...

Regardless of whether or not it is worth engaging with Prof Sharpe on Twitter, I think his second question is important, as it is one that many may ask and some may struggle to answer satisfactory: I think I understand most of the reasons why the differences in responses do not provide...

I wonder if Sharpe’s motivation for these exchanges is to induce inaccurate criticisms and abusive comments so that he can use them to discredit/smear his critics. I am torn between challenging him and ignoring him for reasons given by others above. It’s a shame he can’t be persuaded to discuss...

If you click on the tweet, the heading that is generated in the preview of the article is: “All in the mind? ME can be cured by counselling, says Oxford Professor,” which is where I took it from. But you are right to point out that the exact quote is not currently repeated in the article...

Reply from the CDC CFS Program: “The CDC CFS program did not have correspondence with the SMC.”

I see that the Countess of Mar has now reported the SMC to the charities commission. Minutes of the last Forward ME meeting state: Forward ME minutes: http://www.forward-me.org.uk/1st May 2018.htm Discussion of Forward ME minutes on S4ME...

Pleased to report that The Times has published my letter about the lack of investment in biomedical ME research: https://www.thetimes.co.uk/edition/comment/brexit-s-self-inflicted-wound-on-uk-s-future-vksr9j2jw It appears in Wednesday’s edition. The omission of “most” is their error.

I gather that the changes to the “factsheet” may have been in response to the Forward ME letter. But I will ask the CDC to clarify whether it has communicated with the SMC, as @Esther12 suggests above. (ETA discussion on Forward ME letter to SMC here...

The only reason I was uncertain was that I hadn’t appreciated your first point – that physicians can prescribe these things anyway. Given that, I think you’re absolutely right.

Yes, I may seek clarification from the CDC, now that I have the direct email address for its “CFS program”.

On 26 March I sent to following question to the CDC: 2 months the later (after 3 further requests for an answer) the CDC has responded: Details of the Roundtable report can be found here: https://www.cdc.gov/me-cfs/programs/meetings.html I note that the SMC has now revised its “factsheet”...

Or, indeed, that seeing a psychiatrist is the cause of mental health problems (which may well be true in some cases). I have mixed feeling about this. Do you think we should distinguish between treatments which have been trialled and shown to be ineffective (eg CBT, GET and Rituximab), and...