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  1. MeSci

    A general thread on the PACE trial!

    It's got some bits similar or the same to those from my MP Scott Mann in his rather frustrating response to my email to him about the Carol Monaghan debate and EDM 271: "Thank you for your email regarding the recent debate in Parliament on ME and the PACE trial. Unfortunately I was unable to...
  2. MeSci

    Our chronic fatigue syndrome/encephalomyelitis service is nice (?!), but is it patient friendly? experience of going beyond audit

    Source: Archives of Disease in Childhood Vol 103, Suppl 1, G18 Date: March 2018 URL: http://adc.bmj.com/content/103/Suppl_1/A7.2 Our chronic fatigue syndrome/encephalomyelitis service is nice, but is it patient friendly? experience of going beyond audit...
  3. MeSci

    Low mood, poor quality of life and high symptom impact in adolescents with chronic fatigue syndrome/myalgic encephalomyelis, 2018, Neale et al

    Source: Archives of Disease in Childhood Vol 103, Suppl 1, G13 Date: March 2018 URL: http://adc.bmj.com/content/103/Suppl_1/A5.3 Prevalence and correlates of low mood, poor quality of life and high symptom impact in adolescents attending a tertiary service for chronic fatigue syndrome/myalgic...
  4. MeSci

    Excellent radio Bristol Sonya chowdhury interview

    For those wanting to know, it finishes at 2:32:55.
  5. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Steve Brine Under the terms of their contract with NHS England, general practitioner practices are required to keep adequate records of the attendance and treatment of all their patients, including those who have been diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.
  6. MeSci

    Unrest - reviews and general articles

    "In Denmark, symptoms of ME are misdiagnosed as a mental illness and persons are institutionalised under mental health laws." It happens in the UK too... :emoji_cry:
  7. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Steve Brine The National Institute for Health and Care Excellence (NICE) guideline Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis and management of CFS/ME in adults and children, published in 2007, sets outs best practice for clinicians on the diagnosis...
  8. MeSci

    Dr. Bateman's Summary of Clinicians' Summit March 2-3, 2018

    Good question. I see that his wife and he are reporting on the event here: http://forums.phoenixrising.me/index.php?threads/a-very-exciting-expert-me-cfs-summit.58070/
  9. MeSci

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Apart from @Carolyn Wilshire?
  10. MeSci

    Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis: It's Mitochondria, Not Hypochondria - by Sarah Myhill

    I couldn't think which section to put it in. Can you suggest a better one?
  11. MeSci

    Updates from the UK ME/CFS Biobank / CureME team

    Note that more details on the job can be found here: https://jobs.lshtm.ac.uk/vacancy.aspx?ref=ITD-CRD-2018-05
  12. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    http://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2018-03-08/131695/ Barry Sheerman To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve the medical records held by GPs on the number...
  13. MeSci

    Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis: It's Mitochondria, Not Hypochondria - by Sarah Myhill

    This is a book published by Chelsea Green Publishing, 2018 ISBN 160358787X, 9781603587877 Length 413 pages Mitochondria are the powerhouses of our cells, essential for the production and management of energy at the cell level. Dr. Sarah Myhill has spent years studying the relationship between...
  14. MeSci

    Royds Withy King - The PACE trial – “one of the biggest medical scandals of the 21st century”

    I saw 3: 1. Middle 'n' missing from 'Monaghan' so that it reads 'Moaghan' 3 lines above ' What does this mean for the future?' 2. 'Caroline Dinneage' instead of 'Dinenage' 3 lines further down. 3. I can't find the 3rd! Maybe it was the one referred to by Binkie4 as 'GET': "...has...
  15. MeSci

    How many hours of sleep a night do you need? - Now with Poll

    The vast majority of results in animals do not occur in humans. Believe me, I have studied it extensively.
  16. MeSci

    How many hours of sleep a night do you need? - Now with Poll

    I think that just demonstrated an ill-effect on lab-bred mice. Extremely preliminary, and far from certain that the same occurs in humans.
  17. MeSci

    ITV journalist Gary Burgess talks to David Edbrooke at Jersey Evening Post

    ‘It’s like having a battery that won’t fully charge...’ ITV journalist Gary Burgess tells David Edbrooke how being diagnosed with ME drove him to the depths of despair. IT was on 5 January last year that the foundations of Gary Burgess’ world fell apart live on television – not that the...
  18. MeSci

    My ME story on BBC Radio Jersey

    I think I've started to be more outspoken about having ME (am so dopy that I'm not sure but I think so!). Most people seem to know what I'm talking about. I try to find out if they do before I call it by its name.
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