It's got some bits similar or the same to those from my MP Scott Mann in his rather frustrating response to my email to him about the Carol Monaghan debate and EDM 271:
"Thank you for your email regarding the recent debate in Parliament on ME and the PACE trial. Unfortunately I was unable to...
Source: Archives of Disease in Childhood
Vol 103, Suppl 1, G18
Date: March 2018
URL: http://adc.bmj.com/content/103/Suppl_1/A7.2
Our chronic fatigue syndrome/encephalomyelitis service is nice, but is it patient friendly? experience of going beyond audit...
Source: Archives of Disease in Childhood
Vol 103, Suppl 1, G13
Date: March 2018
URL: http://adc.bmj.com/content/103/Suppl_1/A5.3
Prevalence and correlates of low mood, poor quality of life and high symptom impact in adolescents attending a tertiary service for chronic fatigue syndrome/myalgic...
Steve Brine
Under the terms of their contract with NHS England, general practitioner practices are required to keep adequate records of the attendance and treatment of all their patients, including those who have been diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.
"In Denmark, symptoms of ME are misdiagnosed as a mental illness and persons are institutionalised under mental health laws."
It happens in the UK too...
:emoji_cry:
Steve Brine
The National Institute for Health and Care Excellence (NICE) guideline Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy):
Diagnosis and management of CFS/ME in adults and children, published in 2007, sets outs best practice for clinicians on the diagnosis...
Good question. I see that his wife and he are reporting on the event here: http://forums.phoenixrising.me/index.php?threads/a-very-exciting-expert-me-cfs-summit.58070/
http://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2018-03-08/131695/
Barry Sheerman
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve the medical records held by GPs on the number...
This is a book published by Chelsea Green Publishing, 2018
ISBN 160358787X, 9781603587877
Length 413 pages
Mitochondria are the powerhouses of our cells, essential for the production and management of energy at the cell level. Dr. Sarah Myhill has spent years studying the relationship between...
I saw 3:
1. Middle 'n' missing from 'Monaghan' so that it reads 'Moaghan' 3 lines above '
What does this mean for the future?'
2. 'Caroline Dinneage' instead of 'Dinenage' 3 lines further down.
3. I can't find the 3rd! Maybe it was the one referred to by Binkie4 as 'GET': "...has...
‘It’s like having a battery that won’t fully charge...’
ITV journalist Gary Burgess tells David Edbrooke how being diagnosed with ME drove him to the depths of despair.
IT was on 5 January last year that the foundations of Gary Burgess’ world fell apart live on television – not that the...
I think I've started to be more outspoken about having ME (am so dopy that I'm not sure but I think so!). Most people seem to know what I'm talking about. I try to find out if they do before I call it by its name.
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