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Like trying to dry your hair....that’s a learned movement strategy now, it’s head lowered as much as possible and try to never have to lift your elbows up, because involving upper arm muscles, shoulder muscles etc is much more tiring. I can do my hair but only if I’m very careful how I do it -...

I have accepted my situation. I’ve done my grieving. I’ve changed my life. I’m still slowly deteriorating. People like this just make me really angry. The relentless positivity message and the harm it can do.... the blaming and shaming.... Okay - I’m letting it go now!

Thanks for posting that @SamF - what I find most scary is the ‘evangelical zeal’. It’s just neurolinguistic programming/Gupta/Mickel woohoo all in a great big package. :banghead::banghead::banghead: And of course if you dont want to do the course, you obviously don’t want to get ‘well’.

I agree with that - the danger of symptoms being dismissed as ‘just due to...’. But it seems to me, and I may well be wrong, that the treatment of those symptoms is very different if they are seen as psychological. Much more likely to not be offered treatment.

My take-home message from the articles is not that any one illness is more deserving of sympathy than another, it’s that getting a diagnosis of factitious illness results in sympathy disappearing and medical issues -such as severe weight loss being under-treated. What seems to me to be too...

https://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=12140133 Another article today.

So sorry to hear that @DigitalDrifter ....

The main paper in NZ is running a series of articles on people getting diagnosed with fictitious illness disorder. It seems to be people with EDS suffering from this. Here are the links to the articles so far: https://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=12133645...

I hadn’t come across these academics before today... I was laughing on the one hand and horrified on the other.

I’m really interested in hearing about this research - having been a participant.....

I wonder at what point the weight of the constant pressure will get too much for them....and I like the comment underneath your post @dave30th - ‘still waiting for godlee’!!

It will be interesting to see if other institutions and journals change their stance if Cochrane do retract the whole thing.

I’m speechless...

No - it definitely doesn’t occur to them. Evangelical zeal always really disturbs me.

Two comments so far - one from someone who had glandular fever and is commiserating, and one from a pwME. The author of the article has used a pseudonym - but the photos are of him. He says the article took him several months to write...one paragraph at a time. He used to work for The Times...

https://www.thetimes.co.uk/edition/the-sunday-times-magazine/how-it-feels-to-be-exhausted-24-hours-a-day-28cx59bn9 I think this is a really good article! Written by someone who became ill in 2016. ‘Two years ago, Joseph Luke went from healthy to housebound when he was struck down by ME. He...

It would be good to have a list of exactly how many of the services are under mental health - it seems to me that could be useful for the parliamentary debate and the NICE review...

You have to feel sorry for the mice..... what a complete waste of time, energy and resources.

Wow...

:banghead::banghead::banghead::banghead: - I better stop at that so I don’t get too excitable....