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There, no need to read further. But doesn't "biological psychiatry" (which is interesting!) cross into neurology territory? And are most researchers in psychiatry well trained in molecular biology, structural and functional imaging, (epi)genetics? If not, or rather if they are essentially...

I've sent a mail to the contact person to ask them to include CCC ontop of Fukuda.

A few weeks ago I remember discussing the ICD-10 description of neurasthenia with someone who has ME. From https://icd.who.int/browse10/2019/en#/F48.0, bolding mine: We were worried that a doctor who has no knowledge of ME might diagnose neurasthenia -- according to this description -- for...

An interview of Dr Alain Moreau in Radio Canada, in French. Mentions the OMF post-COVID19 study, his hospital will participate. Link: https://ici.radio-canada.ca/nouvelle/1701011/covid-19-autres-maladies-soins-intensifs-sante-coronavirus Google Translate...

Are they saying people are going to self-diagnose with "nervous fatigue syndromes" because they can now research their symptoms on Internet without the avail of a medical doctor? Or are they saying that you can get burnt out from social media etc? In the former case, well, yes, I can go to the...

Unfortunately the list of referenced papers isn't available yet, the citation numbers don't link to anything.

Dana M. Cairns [1,2], Nicolas Rouleau [1,2], Rachael N. Parker [1], Katherine G. Walsh [3], Lee Gehrke [4] and David L. Kaplan [1,2]* 1. Department of Biomedical Engineering, Tufts University, Medford, MA 02155, USA. 2. Allen Discovery Center, Tufts University, Medford, MA 02155, USA. 3...

Thank you for transcribing the video @Forbin. At 40:45, Systrom shows that his patients are on average taking 234mg +/- 83mg of Mestinon. That's about 4x60mg pills per day. Wondered if he bumped it up at some point? From a blog post or two from some of Systrom's patients, I recall he was using...

Explanation from David Systrom on the possible mechanism of action of pyridostigmine (starts at 39:33), and some preliminary data from his practice. Thread on the whole video here...

Good suggestion. One thing though -- even though feeling ill does implicitly include feeling tired, I personally think of "feeling ill" as "feeling flu-like symptoms". Soreness, shivers and fever, temperature dysregulation, hot flushes, headache and so on. I don't think of fatigue immediately...

Hmm. From Wikipedia https://en.wikipedia.org/wiki/Hydrogen_water: I wonder what outcome measurements the study uses, especially if they're going to focus on brain fog. By "controlled pilot trial", do they mean that there will be a placebo group? Seems essential given the woo-woo claims for...

They are preparing a phase 2 clinical trial for a combination of already approved medication. No info given as to what this combo might be. They haven't done a phase I trial, because they say that the individual meds in this combo are not toxic and so the combo shouldn't be toxic either. So...

OMF May Momentum 2020 fundraiser https://www.omf.ngo/maymomentum/

The only clinical trial on kynurenine I could find is this small pilot study, "The Effect of Intravenous L-kynurenine (LKYN) on Cerebral Hemodynamics in Healthy Volunteers": Oddly enough, the hypothesis is that kynurenine triggers headaches, while OMF aim to reduce their intensity or frequence...

Dr Systrom has a well-detailed hypothesis on the effect of Mestinon in ME/CFS: http://endmecfs.mgh.harvard.edu/heartpreload/ (see "Read more"). The clinical trial, in which participants are given a single dose of Mestinon and then do an invasive CPET, should allow to test for this specific...

None -- you didn't miss anything. The association might release a bit more info soon-ish but they're under non-disclosure agreements.

From the article page on Science: Interesting study! Could it be interesting to look at IL-13 in some way in post-COVID19 patients who attempt to exercise, especially given the last sentence of this quote?

The "continuous health tracking via wearables" bit makes me think that Mike Snyder has been giving his input for the study... Hopefully he'll participate all along :) For reference:

From their May Momentum 2020 newsletter & https://www.omf.ngo/maymomentum/ Post-COVID19 study: https://www.omf.ngo/2020/04/26/tracking-covid-19-patients/ Mestinon trial: https://www.omf.ngo/2020/04/26/the-mestinon-clinical-trial-for-me-cfs/ &...

Recent news apparently, for what it's worth. They are the bioinformatics company that the French association for CFS have partnered with, though we members haven't received any details. They have set up a page on their website about ME, where they present their understanding of its...