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Over the past 3-4 weeks my daughter seems to have developed a SNS stuck in overdrive. It is not sustainable, making things worse. I have a call with GP this morning, but am not sure what can be used to support/ address things. If anyone has been in a similar position and has any pointers , i'...

Great video again @Adam pwme . Will share as widely as i can .

This is total mince . ( Scottish term akin to being utter rubbish) ETA the funding being turned down, not the research. I think this just evidences @Jonathan Edwards comments re MRC.

Subsets would only be relevent if they could be identified pre exercise. It never ceases to amaze me that If the starting point is to " first do no harm" , if you cannot identify who will be harmed, how is any " treatment" ethical. This is not a bit of extra muscle ache!

If melatonin is being prioritised as an antioxidant would yhis knock on to body clock dysregulation and sleep isdues?

Great news @mariovitali

Is this normal practice. If not, then it raises more questions re BMJ.

Brilliant - thank you @mariovitali

Please have more " faults" !

Tagging @mariovitali

or those who cannot medically deal with certain types of vaccination - live vs non live etc due to underlying conditions

W What constitutes a full neurological examination. Our diagnosis ( default CFS) was by paediatrician - i can' anythingt recall remotely neurological in her examination Eta read post explaining. Don' t think as full an exam.as suggested was done. Deteriorated since then anyway.

For many getting any kind of referral from a GP is difficult. That alone may skew things. If it is not something that has an association then who will look for it?

Has mRNA been tested?

I do wonder, though perhaps ethically difficult, if actimetry and some form of video would work . Video would capture any modification of " normal" For example my daughter' s posture changes during/ after PEM. Her muscles and tendons tighten which increases pain so her positioning/ stance...

Thank you @Jonathan Edwards

This

I suspect that the supportive variety of CBT can be a helpful tool. The issue is that people are not aware that there is a different type, so will have more trouble understanding why someone would refuse it. If the " special type" of CBT was explained, particularly as public awareness seems to...

Yep. We are medicalising life.

Given the impact of this research can anyone bring it to the attention of biomedical/ exercise specialists for comment. Perhaps thus weeks conference is an opportunity. This is really dangerous . Too many children have not recovered from similar rehabilitation.