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News from a member of M.E. Awareness NZ... On Tuesday, 9th June, RNZ's Nine to Noon show will be interviewing US author Sarah Ramey (at 10.05). She has written a book about her journey with ME/CFS and other conditions - and analysing what needs to change. The link to her book is below, the hard...

Cort's write up of Angus Mackay & Prof Tate's hypothesis around a dysfunctional hypothalamus has been shared in another thread, but I thought it worth sharing here too. NZ researchers after all :) https://www.healthrising.org/blog/2020/05/27/neuroinflammatory-paradigm-chronic-fatigue-me-cfs

Latest from M.E. Awareness NZ... *CME NEWS*: For Doctors and other medical professionals in New Zealand supporting patients with ME. M.E. Awareness NZ in collaboration with the RNZCGP is excited to announce that an online training program centred on the latest understanding of the...

An article on Radio New Zealand in their 'Comment & Analysis' section from Louise Thornley, to mark International ME and Fibromyalgia Week. https://www.rnz.co.nz/news/on-the-inside/416552/living-with-fibromyalgia-when-lockdown-has-no-end-date Louise Thornley asks... ✦ What is life like for...

An article in the NZ Herald, involving Complex Chronic Illness Support, the regional support group in the Bay of Plenty (https://ccisupport.org.nz/). https://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=12331040

From MECFS Canterbury for ME/CFS Awareness Day... ____________________________ Many people living with Myalgic Encephalomyelitis /Chronic Fatigue Syndrome (ME/CFS) live in permanent lockdown. There are currently no approved treatments for ME/CFS, which means that many people are left house...

Post copied from the New Zealand thread From MECFS Canterbury for ME/CFS Awareness Day... ____________________________ Many people living with Myalgic Encephalomyelitis /Chronic Fatigue Syndrome (ME/CFS) live in permanent lockdown. There are currently no approved treatments for ME/CFS...

Survey from M.E. Awareness NZ... We invite you to complete the "2020 Survey - Living with ME in NZ". To get started, go to https://bit.ly/2020SurveyME The purpose of this survey is to investigate how People with ME* manage their illness in New Zealand. The statistics and information from this...

For International ME/CFS Awareness Day on the 12th of May, MECFS Canterbury is planning to release a video showing the public that the level 4 "Lockdown" is what many people with ME/CFS have been living through for years due to being house or bed bound. They would welcome the participation of...

If you live with ME in NZ, please consider accepting this invitation from the ODI (New Zealand Office for Disability Issues) to participate in a survey on the issues and risks being experience by disabled people in the COVID-19 environment. There is an opportunity in the survey to note the...

The article hasn't been put into the elearning area yet (as at last night). Once it is, we will check what the assessment is. And yes, a GP would get 1 Credit for it, as per the note at the top of the first page of the article 'You can get 1 credit by completing the ELearning assessment for this...

No we don't know that status of some HealthPathway regions yet. (Including Southland.) In early March, M.E. Awareness NZ emailed the regions that we were not clear whether they had the latest pathway in place. We highlighted that there was a new base pathway from the CDHB, and asked to be...

The April 2020 issue of the New Zealand Doctor publication includes an in-depth 'How to Treat' clinical update article on Myalgic Encephalomyelitis /Chronic Fatigue Syndrome. "ME is a common, debilitating and costly disease. Diagnosing and managing complex chronic conditions such as this is...

Just an update on being accepted for priority services it Countdown... Have heard from the ME Auckland group that people can write to Countdown directly without any membership or permit... "I wrote something along the lines of that I have a chronic health condition (ME - myalgic...

Priority access to Countdown's (supermarket) online shopping: If you don't have a mobility parking permit that enables use of Countdown's priority service, you can join the Disabled Persons Assembly NZ - DPA and be issued with a code. Membership of the DPA is free at the moment...

Fantastic. Thanks for highlighting. We will correct our links.

Just wondering about this statement Do we believe that to be true, if people are suffering PEM, but can't identify the trigger which may be cumulative, or days ago, or... ?

Just going off on a random thought now. Does anyone know if any researchers have applied to WHO for funding for ME/CFS research? Sounds like WHO would back research that is lacking?

Hi A friend mentioned to me that they were considering using a new supplement* that others say has helped people with ME. She was confident that there was a good body of university-led research to support it. When I asked if she had verified that best practice was used for each of those...

So @Sly Saint, how do you notice all of these updates and details? Do you subscribe to everything you come across? Invaluable to have someone keeping a watchful eye out for news. Thank you.