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I find vets really impressive. They cover all the different species and all aspects of medicine and surgery. Also much easier to get an appointment and when you have an appointment you get treats. I’d like to join the local vet practice, humans are animals too :rofl:

Now nearly 30,000 views :thumbup: I didn’t prompt it explicitly actually but I have contact with Jessica on the various social media, and I think it might have been prompted by my blog post in some way https://tipsforme.wordpress.com/2016/05/27/paralysis-and-pace/ which she links to (or any...

I have some interesting stuff to add to this thread but too foggy right now.

Is this thread still public? It seems generally sensitive.

The most recent Chronic Illness Inclusion Project post sparked discussion on social media as well as the site itself: http://inclusionproject.org.uk/social-model/ill-versus-disabled-is-there-a-distinction-between-the-two/

@strategist thanks I’d actually tried that before and was asked to pay by bitcoin. It works now

Has anyone got access to the full paper? http://www.biochemsoctrans.org/content/early/2018/04/16/BST20170503 Metabolic abnormalities in chronic fatigue syndrome/myalgic encephalomyelitis: a mini-review Cara Tomas, Julia Newton Biochemical Society Transactions Apr 17, 2018, BST20170503; DOI...

I found some AMPK activators for a blog post 3 years ago I’ve been thinking about my very fluctuating ME journey over the last 20 years. I’ve been around 10% and around 95% on the Bell Disability Scale and everything in between up and down at different times. This week I’ve been thinking...

@Invisible Woman I haven’t tried yet but it seems like you can get the private prescription here http://dicksonchemist.co.uk/new/about-private-presciptions/ The consultation is £35. It sounds like the LDN itself is affordable (though the link to current prices is broken)...

Something I found in my googling is this NHS cost comparison of different drugs. It’s a roundabout way to see if drugs are approved and whether they’re likely to be iffy to do with cost (rather than relevance or safety which is a separate issue) http://gmmmg.nhs.uk/docs/cost_comparison_charts.pdf

@Evergreen thanks. From that Natelson guide So they have fewer side effects :thumbup:

Yes it might have been additives rather than the magnesium itself. Epsom salt baths have helped in the past (though I’m cautious about hot baths because of POTS). It was Himalayan pink salts I used the other day. I’m going to try out the magnesium and vitamin D route first. Best to avoid extra...

LDN I’m interested in but I’m suspicious of the evangelical zeal around it. Over enthusiasm rings alarm bells with me, though of course if it really helps why wouldn’t people be enthusiastic?

So since then I haven’t supplemented magnesium (I seem to get around 100%RDA from my diet)

I had a weird thing with magnesium that it possibly increases my pain (0.82 correlation, though more likely I took it as if it was a painkiller so a correlation not causation issue). https://tipsforme.wordpress.com/2015/06/17/Mendus

This could well be it actually. I’m having blood tests next week so I’ll ask to have it added in. I’ve only had D checked once. It was September, I was really tanned from being in the sun, and I was taking vitamin D in a supplement. The result was still low! Could also be why I’ve sometimes...

Yeah, it’s the same issue I have some Epsom Salts coming tomorrow. The other day a salt bath (not Epsom) helped, was the most effective thing so far. Though baths take a lot out of me so can’t do daily. I’ll look up Flexural, duloxetine, Milnacipran and tramadol

No I haven’t could be worth a go No. I do get migraines and this is different It could be, though I try to be cautious about taking painkillers. Though could be taking painkillers for muscle pain is causing headaches too. But I’m not constantly taking paracetamol or ibuprofen because it makes...

As you’ve probably heard ;) the specific ME NICE guidelines are currently in bad shape they suggest relaxation techniques or The pain management clinic here basically overlaps with the CFS Centre so likely CBT type stuff. I do actually find relaxation techniques can help some pain, but it’s...

Ive started to get all over muscle pain back again and bad headaches. This is frustrating as I used to get this a lot (even when relatively mild) but it had more or less gone. It is bad enough to disturb my sleep.:( In the past I used to take amitriptyline to help regulate my body clock. If you...