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https://meaustralia.net/2018/06/28/research-waste-in-me-and-cfs-trials/ University of Sydney’s Dr Sonia Lee looked at selective reporting in Myalgic Encephalomyelitis and chronic fatigue syndrome research. The study found psychosocial trials on ME and CFS are more likely to engage in selective...

I haven't read through these so not sure if they would provide anything useful https://www.dropbox.com/s/kbjmmuc1utx67md/Concerns%20with%20ME%20Evidence%20Based%20Guidance%20January%202018.pdf?dl=0 https://emerge.org.au/wp-content/uploads/2018/02/PEM-GET-Primer-December-2017.pdf...

"I have played a leading role in the development of cognitive behavioural treatment for the previously untreatable chronic fatigue syndrome (CFS/ME). From 2005 to 2011 I co-led the MRC national PACE trial of treatments for CFS/ME (publications 2011-15). This has shaped NICE guidance and services...

:) I could probably manage that, I would just need to do some homework and make notes. I'm sure there are better people but I am happy to be a backup option if there aren't enough.

I would be happy to go to meetings but wouldnt want to do the reading and responding to docs in a clever, coherent way. If we could do a job share I could manage to deliver the right messages on the day and then we could have a small team doing the other work?

It's ME Jonesy (@JonesyJ49) Tweeted: @profmsharpe Take your ego out of the equation, for starters. It's ME Jonesy (@JonesyJ49) Tweeted: @profmsharpe That’s the problem.

John Muir (@johnamuir) Tweeted: @profmsharpe @JonesyJ49 @tottyscone_one @Saturnation8 @davidtuller1 Read the transcript - defamation? Have to be a little more specific, who defamed you, and what did they say that would be legally actionable outside parliamentary privilege?

It also struck me that his choice of words was very particular and I wonder if he would have used the same if he was saying it to a male MP. It conjures up images of a girl being told off (in the victorian age).

I wonder if it's possible to ask for a copy of the letter

the way he kept going on about "the children" made me wonder if he was going to segway into how wonderful Crawley is

It's quite staggering, especially as it's in writing!

Another thing to point out to him is that we are positive and looking forwards. But the legacy of the PACE trial is holding us back. Medical professionals are still quoting the results to stop us from getiing benefits, insurance payouts, other medical treatment which might even be as basic as...

When Sharpe wrote "the data is sound even if the results are relatively modest.” it sounds like he is referring to the reanalysis results. If so he is acknowledging that the original ones were false. Someone should ask him which results were modest and see what he says

"I have always had a policy of not signing EDMs as they have little legislative impact and cost the taxpayer hundreds of thousands of pounds each year and, in fact, as Leader of the House of Commons and Lord President of the Councik, I am now unable to sign EDMs." Andrea Leadsom

I have reported to the Financial Conduct Authority that companies are still including ME in mental health exclusions which goes against all the guidelines set by insurance bodies. As I didnt have a complaint specific to me they weren't that interested - will try and chase them on it. I had some...

Moderator note: Please be aware that this thread is not in the Members Only Section and therefore content is available to search engines. I have reported to the Financial Conduct Authority that companies are still including ME in mental health exclusions which goes against all the guidelines...

I did get a reply - it didn't get passed :(

Mine said she won't sign as they cost too much money

I think it's a definite statement that PACE didnt get people back to work. If i was on twitter i would double check that with him ;)

sounds like he knows more about the content of meetings, and he says he will do more blogs. It might be worth contacting him to see if anything can be drawn out from an ME point of view, or if he can access any other information.