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Important not to re-write history on the basis of Chinese Whispers - the figures on ME/CFS mortality come from a 2006 paper: Causes of Death Among Patients With Chronic Fatigue Syndrome full paper at SciHub https://sci-hub.st/10.1080/07399330600803766 Discussion...

Given the author is a colleague of Timothy Caulfield this is a pretty disappointing article, it's a mess of history, culture and stats that doesn't gel into anything comprehensible. Saying COVID was the leading cause of death amongst <19s sounds terrible but most of those deaths were of kids...

"We have determined" isn't exactly precise language - does it mean in vivo research carried out by OMF itself, or does it mean OMF researchers have carried out systemic studies of previously published work ? I'm not encouraged by a following sentence which seems to indicate a lack of scientific...

Weird language construction: "stigmatisation by healthcare professionals towards patients". Stigmatisation is a noun, the name for an outcome of the verb to stigmatise. If healthcare professionals hold a stigma about patients, then by definition it is the healthcare professionals who are...

Journal of Psychosomatic Research McGhie-Fraser et al, 2023 Quality assessment and stigmatising content of Wikipedia articles relating to functional disorders "Introduction While the internet is an increasingly popular place for people to access health information, the quality of...

Wesseley, or indeed any individual is unnecessary to explain any of this - which is just the usual (for the UK) playing out of a particular political perspective associated with one or more wings of the Governing Party, prompted or promoted by an aligned media company story telling in a style...

For a further example of the phrase "A government source said" from the same source pushing the same agenda: https://www.s4me.info/threads/uk-job-coaches-at-gp-surgeries-to-push-unemployed-over-50s-back-to-work.31773

For a further example of the phrase "A government source said" from the same source pushing the same agenda: https://www.s4me.info/threads/uk-doctors-will-be-encouraged-to-issue-fewer-sick-notes.31941/#post-460817

This is just clickbait pretending to be journalism - the key phrase = "A Government source told The Daily Telegraph" i.e this is Government kite flying via friendly publication - the original article is here: Sick note crackdown to get more people back into work There's deliberate journalistic...

Royal Society Open Science Big little lies: a compendium and simulation of p-hacking strategies Angelika M. Stefan and Felix D. Schönbrodt Abstract In many research fields, the widespread use of questionable research practices has jeopardized the credibility of scientific results. One of the...

As regards the UK, see fig 4 above; while the long term ill figure has increased by around 350,000, the number "looking after family/home" has fallen by 100,000+. By age the greatest increase in economic inactivity has been amongst the 50-64 age group (Fig 3a below) who may be as much affected...

Further complexity of how people report ill health versus retirement:

Twitter thread on UK employment figures, includes data on economic inactivity and levels of ill health and disability, two charts of particular interest:

Selvage: 1 a : the edge on either side of a woven or flat-knitted fabric so finished as to prevent raveling specifically : a narrow border often of different or heavier threads than the fabric and sometimes in a different weave b : an edge (as of fabric or paper) meant to be cut off and...

(not a lawyer) I don't think it's possible to extrapolate from that small amount of detail as to whether negligence was involved. Questions such as: Was there avoidable error ? Was there available alternative treatment which was delayed ? Were there avoidable consequences of wrong illness...

The study itself maybe sound but the cohort identification is based on Taiwanese diagnoses 2000 - 2010 which looks to have some conflation with chronic fatigue (criteria is Fukada 1994), study says: "With regard to the prevalence of comorbidities, participants with CFS had higher numbers of...

Science.org Disorder or difference? Autism researchers face off over field’s terminology Rachel Zamzow Excerpt A long-smoldering debate among scientists studying autism has erupted. At issue is language—for example, whether researchers should describe autism as a “disorder,” “disability,”...

Must admit I didn't recognise Pelosi's name before I posted above. I found seven papers where he is co-author including with Wessely and Deary, between 1988 and 1995 which mentions either CFS or PFS - the last of these: Chronic Fatigue Syndrome in the Community Prevalence and Associations...

It's not appealing to conspiracy to ask that a professional abide by the standards set by their fellow professionals, as set out above, notably: "exercise their professional skills and judgement to the best of their ability, discharge their professional responsibilities with integrity and do...

I've never had HR issues, PEM related or otherwise. Age is messing things up but I had ME/CFS for at least two decades and maintained a good HR response to activity/rest patterns and no obvious variations in PEM versus non PEM.