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Thank you @mango ! I tried eating quick cooking oats with peanut butter today and my stomach is fine. I had tried plain oats several times previously and got stomach pain as a result every time. Might also make a difference that they were slow cooking large flakes oats and perhaps harder to...

This was also my initial reaction although I was thinking specifically about low dose Abilify as I am not familiar with the other drugs listed above. My reason is both from family members, who have ME, experiences with LDN and low dose Abilify and also from anecdotal reports online from people...

Me either in, in Canada in 1989. But that was before GET I guess. Unfortunately, I took it on myself to try to exercise my way out of the early stages with now predictable results.

I remember reading earlier that the plan was to try to get samples from people in the UK but if this doesn't work to expand to a larger geographical area. Is this still the plan or is DecodeME now pretty confident that there will be enough UK participants? Asking as I'd love to send a bit of...

Just thought I'd mention another family member with ME and I both got a Novavax booster in July and had basically no reaction compared to a couple of days feeling pretty sick from Pzifer & Moderna vaccines & boosters. I will get a bivalent booster when they become available to me in BC though...

Signed. Very easy. Takes about 2 seconds to do.

To participate in the study you need to be in South Florida for blood draws. Here's the reply I got in response to my inquiry: "Unfortunately, we need to have our patients locally in South Florida at either INIM Davie Clinic or Kendall Clinic for two blood drawers. We are sorry that you will...

I saw Dr Raj in his dysautonomia clinic in Calgary for an assessment a few years ago. My impression was that he had no understanding of ME nor was he interested in gaining an understanding. Edited to add "My Impression"

I'm surprised to see that Simon Wessely did a Masters and Doctorate in epidemiology. Bit hard to reconcile this or am I missing something? 'He did pre-clinical at Trinity Hall Cambridge, with a BA in History of Art, and then BM BCH at University College Oxford. His Masters and Doctorate are in...

I've had a friend explain to me that the placebo effect shows the power of the mind to heal ourself and illustrates how a positive attitude is essential for healing. I think this is quite widely believed.

Thanks for posting @Mij This article has a bit more detail on the study methods. "Using a functional MRI where patients inhale xenon gas, researchers can see in real-time what it is happening inside the lungs. Preliminary results show symptoms are related to microscopic abnormalities that...

Interested in what your investigations find @duncan . I too have below reference range platelet counts.

Well - that was just one example. More embarrassingly, at that time of my life if I was exhausted but needing to drive and do something I'd stop in the corner store and buy a soda to get me through. Always gave me a boost, more than water would have I think. ........hmm - now you've got me...

Yes - definitely in my case. When I was mild a good dose of sugar would allow me to carry on physically. One memory I have is of feeling exhausted and that I couldn't go any further walking around in a market. I bought a very large bottle of lemonade, sat down and drank most of it. In 10 minutes...

Very interesting interview @dave30th A breathe of fresh air!

Mine are low too. I just had some labs done and I'm somewhat under the reference values.

I took Mestinon for about half a year. Started at a low dose of 15mg & worked up to 60mg x3/day. I'm typically sensitive to medications but going slowly Mestinon resulted in only minor temporary side effects. I noticed an almost immediate improvement in energy level and remember thinking that...

Inspiring blog @hellytheelephant!

Wow - I sure messed up on the study numbers above. So much for providing ease of reading. Here is my sheepish correction. The entire study was composed of over 150,000 people. This consisted of about 60,000 study subjects who tested positive for Covid and about 90,000 controls who had negative...

These are huge numbers! For ease of reading I have removed the stats from the quote above. (Six to twelve months after the test date), More than half (53.1%) of test-positives reported at least one of the following conditions: concentration difficulties, memory issues, sleep problems, mental...