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Thanks @Lisa108 I stayed with him on the ward until 2am, froze outside for half an hour waiting for taxi, dodging more drunks, finally home at 3.10am :ill: I think they’re just gonna observe him for 24 hours, hopefully his heart will reset itself so they don’t have to intervene, but if so it...

Luckily i got to move to where he was; not long after so that helped. He’s just been moved into a ward, its 1.30am. Theyre keeping him in for 24 hours, so i’ll be getting a taxi home soon. I have no idea if i’ll make it back here again tomorrow to visit him :( feel so useless with this damn...

I guess i’ll find out when i eventually pass out lol

Its 11pm, i’m sitting in hospital waiting room. My partner came round to mine at 9.30 to use my heart monitoring equipment as he has Wolf Parkinson White Syndrome and he was tachycardic. He’s usually okay but they’ll need to keep a check on him in case they need to shock him. I rang the...

A vaccine triggered the end of my life 20 years ago, i’ve never had one since, of any variety. Yes, i’m paranoid :nailbiting:

My first diagnosis was ‘ME type illness’ until i was upgraded later.

I’m still waiting for brain specs to be invented, my eyes are great, its the brain that can’t focus o_O

I really want to buy this book, but i’m hoping to hear from others how much brain energy is required first, so i’m holding off buying for now

I’m so sorry you’re going through this again @LucyLouWho I know how traumatic hospital is, my heart goes out to you :cry: I hope you find a way to get through this somehow. When your operation is a success and you can move again, give your friends a kick up the ass from me :mad: We’re all...

I think if this ever becomes compulsary will be the day i eventually give up entirely and see how long i can stay alive with zero money.

The text below is copy and pasted from ‘Benefits and Work’ website. Didn’t want to add a link in case people couldn’t sign in to read it. While i think its a great way of stopping assessors from lying, the thought of being filmed talking about really private things gives me the creeps. Do...

I ride my motorbike for 15 mins through immense pain, discomfort, jelly body and brain fog (in the middle of the night so i’ll only kill myself if my body or brain seizes on me). I then don’t ride it during the 2-3 months of paralysis aferwards. I wish i could learn some ‘problematic avoidance...

Fantastic @Graham

After the initial shock when i was diagnosed. I had a good cry then just got on with it; not because i’m strong or a fighter but because i had to minimise the devastating impact that constant hospital visits and operations had on the ME. My only pressure to stay positive, came from myself...

Very nice article. Wish more were like that

Phenomenal speech @JaimeS I’m so sorry for your loss.

Me and partner rode around last night to see our local Penshaw Monument near Sunderland lit up in blue for ME... This monument can normally be seen for miles around even when not lit up but last night we literally couldn’t find the thing because of rain and thick fog! We found it eventually...

Yippee just seen my shoes on the Durham photo :)

I just searched youtube for millions missing videos from yesterday, and this symbol popped up again, and gave me that same uneasy feeling. I’m fascinated why its creating a negative reaction in many of us. Not just us as sufferers but carers alike. As others have mentioned, i think it might be...

I think symbolism is a great idea, if people have the freedom to express themselves as they wish. There’s no point expecting hundreds of people to blindly copy you, if the act of doing so either makes them uncomfortable or has a completely different meaning to them and not something they...