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  1. Revel

    CBT- Jen Brea Twitter

    I have had ME/POTS since the age of 9, but it took 40 years for me to be officially diagnosed by the NHS. I cannot even begin to describe the abuse from NHS staff I have endured during those 4 decades, including 9 months in a mental health facility as a child. Unusually, I received my POTS...
  2. Revel

    BBC: Chronic fatigue trial results 'not robust', new study says

    Man, this thread has gone off track way too many times, I can't keep up. To be clear, we are talking Greek philosopher here, not confessing to some involvement in the untimely demise of the brilliant Brazilian football player? :confused:
  3. Revel

    The Mighty: How My Life Has Changed Since I Developed ME/CFS

    Fair enough, @JemPD, I totally see your point of view, and you're probably correct in your interpretation. Perhaps I got too hung up on the author's use of the word "evolve". The onset of ME caused the author to "evolve" in ways that she could not previously have imagined. To "evolve into" is...
  4. Revel

    The Mighty: How My Life Has Changed Since I Developed ME/CFS

    I am not being critical of the author's experience of ME, this is her journey, albeit a relatively new one. In contrast, I have been sick with ME for exactly the same number of years as the author had been participating in all that life has to offer those blessed with good health. All of...
  5. Revel

    BBC: Chronic fatigue trial results 'not robust', new study says

    Upvoting Idris . . . :inlove:
  6. Revel

    Tai Chi Equals or Betters Aerobic Exercise in Fibromyalgia

    I tried a 10 minute beginner's lesson a few years back. The next morning I couldn't even raise an arm to brush my teeth, it PM'd me quite badly. Now that my functional baseline is even lower than back then, I wouldn't dare attempt it again.
  7. Revel

    The Mighty: How My Life Has Changed Since I Developed ME/CFS

    "I am a lawyer, career coach and Myalgic Encephalomyelitis warrior" - Lisa Alioto . . . and another thing (feeling particularly snarky today, so apologies :grumpy:), I am so over this "warrior" stuff. Alas, I am unworthy of such a title, I am simply surviving day to day because, for now, it...
  8. Revel

    The Mighty: How My Life Has Changed Since I Developed ME/CFS

    According to her other articles, she was 44 when she first became ill, and she is 45-46 now, so a relative newcomer. Give it a couple of decades (four in my case) and get back to me about the "gift" of ME . . .
  9. Revel

    The Mighty: How My Life Has Changed Since I Developed ME/CFS

    Well, I enjoyed this article right up until the bit about how she views the new individual that she has become since developing ME as a "gift". I have an acceptance of my illness and the way that I now have to live my life, but I can't say that I have uncovered any hidden depths within myself...
  10. Revel

    Woman 'with ME' won world kickboxing championship

    I find it so difficult to imagine an individual with ME competing against and winning over athletes who do not have ME, especially at "elite" level. That is quite some disadvantage to overcome. Even when I once achieved a remission so seemingly complete that I thought I was 100% healthy again...
  11. Revel

    BACME Meeting 14-15 March

    Thanks for the tip, @James, worth a punt? Wonder what the S4ME racing syndicate's horse should be called? :emoji_horse:
  12. Revel

    Woman 'with ME' won world kickboxing championship

    Sounds like a rehash of last year's interview (see below). She's hoping that Hollywood will pick up the story if she gets enough publicity. Would love to hear in greater detail about the "strict diet and training regime" that allowed her to manage her ME but, alas, all articles so far gloss...
  13. Revel

    BBC News: "'Gigi Hadid has Hashimoto's disease - so do I'"

    A dash of pink blusher and a swipe of lip gloss helps, if you really wanna go there, @TiredSam! :confused:
  14. Revel

    Daily Mail: Royal Wedding harpist on her diagnosis of ME/CFS

    Cheers! Think of me as S4ME's very own "Indiana Jones and the Paper of Doom"! :rofl:
  15. Revel

    Using Heart rate monitoring to help with pacing.

    For anyone interested in the Mio Alpha 2, they are currently selling at £47.69 here (shorter strap only): https://www.tredz.co.uk/.Mio-Alpha-2-Heart-Rate-Monitor-Sports-Watch_76813.htm
  16. Revel

    Daily Mail: Royal Wedding harpist on her diagnosis of ME/CFS

    No worries, @Liv aka Mrs Sowester! I only read it when I am "foggy", as the content doesn't tax me too much. :rofl:
  17. Revel

    Daily Mail: Royal Wedding harpist on her diagnosis of ME/CFS

    So, how come it's always me that finds these articles? Oh . . . :rolleyes:
  18. Revel

    Daily Mail: Royal Wedding harpist on her diagnosis of ME/CFS

    Not too bad (just avoid the usual ignorant reader's comments at the end of the article): http://www.dailymail.co.uk/femail/article-5358509/I-played-Kate-Wills-reception-struck.html
  19. Revel

    PIP claimants - email your experiences of the process to Laura Pidcock MP before Westminster debate next Wednesday

    Agreed. My PA4 was undertaken with a physiotherapist, and it was a frustrating experience. He made it clear from the outset that, in his view, "ME, chronic fatigue, it's all the same thing", and that I could vastly improve my health if only I would take up some form of exercise. He had...
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