Recent Activity
Activity stream for all registered members at Science for ME.
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Sean replied to the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
Round and round the criteria clown show goes.
May 20, 2024 at 12:13 PM -
Sean liked ME/CFS Skeptic's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
The Jason et al. estimate of 0.4% was for the Fukuda CFS criteria so it seems that self-reported CFS is much higher than actually...
May 20, 2024 at 12:12 PM -
Sean liked Hutan's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
British Columbia Generations Project (BCGP) 30,000 people, completing regular surveys, and linked to their health records Yes, that's a...
May 20, 2024 at 12:12 PM -
Sean liked Ravn's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
That seems to me a massive missed opportunity. The dark figure of the undiagnosed is arguably an even bigger source of uncertainty than...
May 20, 2024 at 12:12 PM -
Sean liked Ravn's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
Yes. In some twisted way I feel my health is good, despite the ever present, highly unpleasant - understatement - and very limiting ME...
May 20, 2024 at 12:12 PM -
Sean liked Dolphin's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
So the options are "good" or "not good" Initially I agreed with you (in my head). But then I recall answering a similar questionnaire...
May 20, 2024 at 12:12 PM -
Sean liked Hutan's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
That's a great summary @ME/CFS Skeptic. On the possible underestimation of the 0.4% prevalence: I don't know about that Project, but...
May 20, 2024 at 12:11 PM -
Sean liked ME/CFS Skeptic's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
Twitter thread summary of the preprint: [MEDIA] 1) Interesting new study from Canada from the research team of Luis Nacul. The authors...
May 20, 2024 at 12:11 PM -
Yann04 replied to the thread United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland).
Long Covid Teachers Join Forces to Sue Ministers - Schoolsweek https://schoolsweek.co.uk/long-covid-teachers-join-forces-to-sue-ministers/
May 20, 2024 at 12:11 PM -
Sean liked ME/CFS Skeptic's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
Unfortunately, the follow-up examination of people who self-reported CFS did not include an clinical examination by a physician but more...
May 20, 2024 at 12:11 PM -
Sean liked ME/CFS Skeptic's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
This seems to be the main conclusion: "...34% (n=29) of those who self-reported ME/CFS fulfilled diagnostic criteria for ME/CFS. The...
May 20, 2024 at 12:11 PM -
Sean liked Andy's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
Ignoring the jumbled confusing use of ME, CFS and ME/CFS in the abstract. "Consenting individuals completed the following three...
May 20, 2024 at 12:11 PM -
Sean liked Yann04's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
Wondering how they found a sample of people who fit the CCC and/or IOM, of which >40% rated their health as “good”? Also here is link...
May 20, 2024 at 12:10 PM -
Sean liked Dolphin's post in the thread Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul.
https://www.medrxiv.org/content/10.1101/2024.05.16.24307437v1 Epidemiology of Myalgic Encephalomyelitis among individuals with...
May 20, 2024 at 12:10 PM -
Sean replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Exactly. Also, a typo in your letter, near the end: We assume the research team will be wiliing
May 20, 2024 at 12:10 PM
