Recent Activity
Activity stream for all registered members at Science for ME.
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alktipping liked Sean's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.
Free-text analysis revealed stress and trauma as the most common causal attributions, Was that before or after they had those casual...
Jun 12, 2024 at 10:58 PM -
alktipping liked Turtle's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.
For years and years FND was conversion and now they can educate the patients out of it? Just 21% of patients (35 out of 166) did all 3...
Jun 12, 2024 at 10:58 PM -
alktipping liked NelliePledge's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.
Tripe
Jun 12, 2024 at 10:58 PM -
alktipping liked Andy's post in the thread Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al.
"The majority of participants were women (72.1%), white British (68.9%) and not in full time work (78.3%), with 24.6% on long-term sick...
Jun 12, 2024 at 10:58 PM -
Colleen Steckel liked Medfeb's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Posted on twitter by Jeanette Burmeister [MEDIA] Part 1 of my new 4-part article about NIH’s Effort Preference claim for ME. Read about...
Jun 12, 2024 at 10:58 PM -
alktipping liked ME/CFS Skeptic's post in the thread Rehabilitation Interventions for Physical Capacity and Quality of Life in Adults With Post-COVID-19 Condition, 2023, Pouliopoulou et al..
Don't think this review from last year has been posted yet on S4ME. I noticed that it was used as a source in the NASEM report on Long...
Jun 12, 2024 at 10:56 PM -
rvallee replied to the thread Webinar: USA: National Academy of Medicine: New Definition Proposed for Long COVID, June 11, 2024, 1 PM EDT.
This is fine but really all it does is slap a seal of approval on the rough description that was mostly fleshed out in the very first...
Jun 12, 2024 at 10:54 PM -
MrMagoo replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I know what I was trying to think of, but couldn’t. Emotional Labour? Mental load? Mental load is usually described as the...
Jun 12, 2024 at 10:54 PM -
alktipping liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I wouldn’t really expect a review to ask about work, but I would have expected a review of my ME to end up with me talking about work as...
Jun 12, 2024 at 10:54 PM -
alktipping liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Just to go back to the question that started me on this train of thought: are people asked about capacity for work/ study/ etc in other...
Jun 12, 2024 at 10:53 PM -
Kitty liked Jonathan Edwards's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
The trouble with that report is that it is only two families and the knock out mice had defects in multiple organ systems - i.e. not...
Jun 12, 2024 at 10:53 PM -
Kitty liked Yann04's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I just stumbled across this and sent it too my mum five minutes ago haha — cheers
Jun 12, 2024 at 10:53 PM -
Kitty liked SNT Gatchaman's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
@Yann04 In case you haven't seen this yet Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome (2024, Preprint:...
Jun 12, 2024 at 10:53 PM -
Kitty liked Keela Too's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
I think part of our problem with ME is that some medical professionals think exactly this way about ME and effectively want to shut down...
Jun 12, 2024 at 10:52 PM -
Kitty liked MSEsperanza's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
Apologies for just popping in -- not able to participate in the discussion but the question about what could doctors do to help people...
Jun 12, 2024 at 10:52 PM
