Recent Activity
Activity stream for all registered members at Science for ME.
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rvallee replied to the thread USA: NIH National Institutes of Health news - next event May 28 2024.
Complete waste of time and resources, yet again. But we know for a fact that the rehabilitation will be misrepresented. As will the...
May 9, 2024 at 4:56 PM -
rvallee replied to the thread An opportunity for management of fatigue, physical condition, and (QoL) through asynchronous telerehabilitation in post-acute COVID-19..., 2024.
The formulaic pattern continues: take some useless treatment model, compare it to a slightly less biased approach, find that it's...
May 9, 2024 at 4:54 PM -
RedFox liked sneyz's post in the thread A general thread on the PACE trial!.
[MEDIA]
May 9, 2024 at 4:53 PM -
RedFox liked rvallee's post in the thread A general thread on the PACE trial!.
That was really good. A few issues with PEM being about exercise rather than exertion, but otherwise the tone and content were...
May 9, 2024 at 4:53 PM -
RedFox liked Kalliope's post in the thread A general thread on the PACE trial!.
YouTuber and behavioural scientist Pete Judo has done a video debunking the PACE trial. It includes clips with David Tuller and walks...
May 9, 2024 at 4:53 PM -
bobbler liked Jaybee00's post in the thread An Update of a Theory.
Agree…would be useful for all these new “Long Covid” researchers. Also would be helpful to list potential/likely druggable...
May 9, 2024 at 4:52 PM -
rvallee posted a new thread.
An opportunity for management of fatigue, physical condition, and (QoL) through asynchronous telerehabilitation in post-acute COVID-19..., 2024
An opportunity for management of fatigue, physical condition, and quality of life through asynchronous telerehabilitation in post-acute...
Forum: Psychosomatic research - ME/CFS and Long Covid
May 9, 2024 at 4:51 PM -
bobbler liked Midnattsol's post in the thread Causal overstatements in modern physical activity research, 2024, Skarpsno.
Thanks @SNT Gatchaman :) Needless to say on this forum, but the points raised in the editorial are obviously relevant also for research...
May 9, 2024 at 4:48 PM -
FMMM1 replied to the thread USA: NIH National Institutes of Health news - next event May 28 2024.
I reckon they should just do a large sleep study i.e. using high end actimetry - then look at possible interventions and run trials on...
May 9, 2024 at 4:42 PM -
forestglip replied to the thread Remarkable researchers hunting for ‘something in the blood’ of people with ME.
Agreed. Comparing the same patients before and after inducing PEM would not only ensure that every single participant actually has ME,...
May 9, 2024 at 4:39 PM -
rvallee liked Cinders66's post in the thread Help writing an email template to send the NIHR (coinciding with local billboards)?.
These are examples of what NIHR were previously funding for ME/CFS (from searching s4ME forum) Paediatric chronic fatigue syndrome...
May 9, 2024 at 4:39 PM -
Maat replied to the thread A general thread on the PACE trial!.
And MAGENTA Trial published 2 March 2024 for CYP Graded exercise therapy compared to activity management for paediatric chronic fatigue...
May 9, 2024 at 4:36 PM -
FMMM1 liked Hutan's post in the thread USA: NIH National Institutes of Health news - next event May 28 2024.
They say they did. And Lucinda Bateman seems to be involved in, at least, the 'structured pacing' trial. I'm not sure what 'structured...
May 9, 2024 at 4:33 PM -
Robert 1973 liked Dolphin's post in the thread A general thread on the PACE trial!.
The FINE Trial wasn’t published till 2010: https://www.bmj.com/content/340/bmj.c1777
May 9, 2024 at 4:23 PM
