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General Advocacy Discussions

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  1. freddyV

    Harassment claims in the media and social media.

    freddyV, Aug 25, 2021 ... 2 3
    Replies:
    53
    Views:
    6,937
    Lou B Lou
    Feb 26, 2023
  2. Adam pwme

    New Video: Chronic Fatigue Syndrome is a terrible name

    Adam pwme, Jan 11, 2023
    Replies:
    14
    Views:
    2,030
    DokaGirl
    Jan 12, 2023
  3. Simone

    Butterfly symbol for ME/CFS

    Simone, Jan 6, 2023 ... 2
    Replies:
    28
    Views:
    4,748
    Simone
    Jan 8, 2023
  4. CRG

    UK:(England)Department of Health & Social Care, Ministers 12/2022

    CRG, Dec 15, 2022
    Replies:
    1
    Views:
    1,316
    Shadrach Loom
    Dec 15, 2022
  5. InitialConditions

    The Most Underfunded Disease at the NIH (Advocacy video by Winston Blick)

    InitialConditions, Feb 3, 2022
    Replies:
    4
    Views:
    2,134
    NelliePledge
    Dec 3, 2022
  6. JaimeS

    Who was it that said being in support groups leads to poor outcome?

    JaimeS, Jul 24, 2018 ... 12 13 14
    Replies:
    274
    Views:
    34,580
    Arvo
    Nov 27, 2022
  7. Andy

    Reporting on chronic, and particular energy-limiting, conditions - Ed Yong

    Andy, Sep 29, 2022
    Replies:
    1
    Views:
    1,453
    Sly Saint
    Sep 29, 2022
  8. bobbler

    Valerie Eliot Smith blog (6th Sept) - 'stepping back'

    bobbler, Sep 15, 2022
    Replies:
    7
    Views:
    1,857
    DokaGirl
    Sep 15, 2022
  9. Sly Saint

    Provide feedback to Google re NHS ME/CFS info

    Sly Saint, Sep 7, 2021
    Replies:
    5
    Views:
    1,699
    RedFox
    Aug 4, 2022
  10. Trish

    Is it true that more than half of medical consultations are for MUS? A look at the evidence.

    Trish, Mar 12, 2019 ... 5 6 7
    Replies:
    132
    Views:
    18,373
    Esther12
    Jul 31, 2022
  11. Lidia Thompson

    Request for information regarding comparisons with ME/CFS and Long Covid

    Lidia Thompson, Jan 24, 2022 ... 2
    Replies:
    23
    Views:
    3,295
    Hutan
    Jul 31, 2022
  12. MittEremltage

    Why use Forget Me Not as a symbol for ME?

    MittEremltage, May 12, 2022 ... 2
    Replies:
    24
    Views:
    3,105
    Wonko
    May 14, 2022
  13. Samuel

    The order of magnitude is off — ME/CFS is a human rights issue

    Samuel, Feb 20, 2022
    Replies:
    8
    Views:
    1,917
    Trish
    Apr 26, 2022
  14. Andy

    WebMD: Even Women Doctors Find Their Symptoms Aren’t Taken Seriously

    Andy, Apr 15, 2022
    Replies:
    4
    Views:
    1,352
    Arnie Pye
    Apr 16, 2022
  15. Hoopoe

    Postexertional Malaise Syndrome?

    Hoopoe, Apr 12, 2022 ... 2
    Replies:
    27
    Views:
    3,214
    JemPD
    Apr 13, 2022
  16. CRG

    Freedom of Information UK

    CRG, Apr 7, 2022
    Replies:
    0
    Views:
    1,035
    CRG
    Apr 7, 2022
  17. Hoopoe

    A practical way to get more high quality research into ME/CFS and specialized care

    Hoopoe, Mar 11, 2022
    Replies:
    1
    Views:
    1,154
    Samuel
    Mar 14, 2022
  18. Florence

    Looking for authoritative explainer of cognitive dysfunction

    Florence, Feb 16, 2022
    Replies:
    5
    Views:
    1,282
    Hutan
    Mar 11, 2022
  19. Arvo

    Coining a term for being limited in your interrelated energy and time.

    Arvo, Feb 11, 2022 ... 2
    Replies:
    23
    Views:
    2,833
    Arvo
    Feb 25, 2022
  20. Andy

    My opinion on the topic “angry posts by patients on social media are harmful and something should be done about it”

    Andy, Feb 23, 2022
    Replies:
    13
    Views:
    1,535
    DigitalDrifter
    Feb 23, 2022
Showing threads 41 to 60 of 213

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