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European Parliament questions

Discussion in 'General ME/CFS News' started by Sly Saint, Nov 23, 2017.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    9 November 2017
    "Subject: Funding of research on ME/CFS

    Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) affects more than one million people within the EU. This illness is characterised by persistent and excessive fatigue, post-exertional malaise, flu-like symptoms and cognitive impairments. Most sufferers are unable to lead a normal life. Those affected are predominately women.

    Many of the symptoms of ME/CFS overlap with those of Lyme disease and fibromyalgia.

    There are no established biological diagnostic tests for ME/CFS, nor are there any treatments.

    Scientists from Newcastle and Cornell Universities have recently published data showing that mitochondrial energy production is impaired in ME/CFS, while mental health remains normal. Scientists at Stanford University have also recently published data showing activation of immune cells (clonal expansion) in ME/CFS, which is similar to that found in Lyme disease.

    These studies highlight the need for biological research into ME/CFS. Recently, the American National Institute for Health (NIH) allocated funding to biological ME/CFS Research Centres and single ME/CFS projects.

    1. Will the Commission review the recently published biological ME/CFS studies and fund expanded studies which include Lyme disease and fibromyalgia?

    2. Will the Commission review the recent allocation of NIH funding for biological ME/CFS research and set out how it proposes to fund ME/CFS research?"
    Inara, Barry, MarcNotMark and 7 others like this.
  2. Valentijn

    Valentijn Moderator Staff Member

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    I hate it when groups make it sound like ME is all about Lyme or pretty much the same thing as fibromyalgia. How can anyone answer a question which itself contains assumptions that can't be accepted?

    Any idea who asked these questions?
    ahimsa, Inara, ladycatlover and 12 others like this.

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