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General Advocacy Discussions

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  1. bobbler

    Scope Campaign: Disability Perception Gap

    bobbler, Mar 18, 2023
    Replies:
    1
    Views:
    772
    Sean
    Mar 19, 2023
  2. Obermann

    Sci-hub blocked in Sweden

    Obermann, Jul 6, 2019 ... 2
    Replies:
    25
    Views:
    5,170
    Webdog
    Jul 11, 2019
  3. Hutan

    Responsible ME/CFS journalism - how to report on treatments?

    Hutan, Oct 21, 2023 ... 2
    Replies:
    20
    Views:
    1,538
    Sean
    Oct 30, 2023
  4. Richard Smallfield

    Research funding: Examples needed of ME research projects failing due to not getting funding

    Richard Smallfield, Apr 13, 2023 ... 2
    Replies:
    31
    Views:
    2,476
    CRG
    Apr 19, 2023
  5. Tia

    Requesting accessibility for events

    Tia, Jul 8, 2018
    Replies:
    0
    Views:
    1,193
    Tia
    Jul 8, 2018
  6. Lidia Thompson

    Request for information regarding comparisons with ME/CFS and Long Covid

    Lidia Thompson, Jan 24, 2022 ... 2
    Replies:
    23
    Views:
    2,420
    Hutan
    Jul 31, 2022
  7. Andy

    Reporting on chronic, and particular energy-limiting, conditions - Ed Yong

    Andy, Sep 29, 2022
    Replies:
    1
    Views:
    1,105
    Sly Saint
    Sep 29, 2022
  8. Shadrach Loom

    Renaming the disease: who calls the shots?

    Shadrach Loom, Mar 7, 2023 ... 2 3
    Replies:
    40
    Views:
    3,212
    alex3619
    Mar 10, 2023
  9. Hoopoe

    Reflections on advocacy

    Hoopoe, Dec 15, 2019 ... 2
    Replies:
    27
    Views:
    2,864
    Hoopoe
    Dec 29, 2019
  10. MEMarge

    Reality of ME. How would you get this across (briefly) using words or graphics?

    MEMarge, Feb 4, 2021 ... 2
    Replies:
    25
    Views:
    1,938
    mango
    Feb 6, 2021
  11. Simon M

    Published poems by Veronica Ashenhurst, who has Severe ME

    Simon M, Oct 4, 2021 ... 2 3
    Replies:
    40
    Views:
    6,745
    Simon M
    Jan 9, 2024
  12. Sly Saint

    Provide feedback to Google re NHS ME/CFS info

    Sly Saint, Sep 7, 2021
    Replies:
    5
    Views:
    1,362
    RedFox
    Aug 4, 2022
  13. Andy

    Proud Accessible Activism: The ME Debate Virtual Demonstration

    Andy, Feb 3, 2019
    Replies:
    19
    Views:
    1,953
    Adrian
    Feb 4, 2019
  14. ME/CFS Skeptic

    Progress is happening: an overview of positive developments in the ME/CFS community - blog post by Michiel & Evelien

    ME/CFS Skeptic, Nov 2, 2020
    Replies:
    2
    Views:
    1,435
    Peter Trewhitt
    Nov 2, 2020
  15. Clara

    Professors crowdsourcing scrutiny of research papers and retractions on Twitter.

    Clara, Sep 22, 2018
    Replies:
    6
    Views:
    1,495
    Hutan
    Sep 23, 2018
  16. Hoopoe

    Postexertional Malaise Syndrome?

    Hoopoe, Apr 12, 2022 ... 2
    Replies:
    27
    Views:
    2,207
    JemPD
    Apr 13, 2022
  17. leokitten

    Politico: He Was Given 6 Months to Live. Then He Changed D.C. (Brian Wallach ALS)

    leokitten, Jan 18, 2022
    Replies:
    14
    Views:
    1,519
    Jaybee00
    Feb 7, 2022
  18. InitialConditions

    Pitching to Panorama: Efforts to commission a documentary on NICE guideline, bad science (PACE etc), and patient harm

    InitialConditions, Jul 4, 2023 ... 3 4 5
    Replies:
    98
    Views:
    5,532
    AknaMontes
    Jul 11, 2023
  19. Wyva

    Physician's Weekly: Why Patient Advocacy Is Important Without Being Hated, 2018, Girgis

    Wyva, Jan 11, 2022
    Replies:
    3
    Views:
    781
    alktipping
    Jan 12, 2022
  20. Andy

    Patient: "The latest thinking on chronic fatigue syndrome"

    Andy, Dec 21, 2018 ... 2
    Replies:
    37
    Views:
    3,685
    Esther12
    Dec 24, 2018
Showing threads 61 to 80 of 203

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