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General Advocacy Discussions

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  1. Amy101

    Merryn Crofts - our last family statement

    Amy101, Aug 25, 2018 ... 2
    Replies:
    20
    Views:
    3,626
    NelliePledge
    May 5, 2019
  2. Andy

    Proud Accessible Activism: The ME Debate Virtual Demonstration

    Andy, Feb 3, 2019
    Replies:
    19
    Views:
    1,957
    Adrian
    Feb 4, 2019
  3. Invisible Woman

    What does having ME mean to you?

    Invisible Woman, Mar 2, 2020
    Replies:
    18
    Views:
    1,675
    alktipping
    Mar 3, 2020
  4. Andy

    MEAction: Our Community will Not Suffer Stigma and Distortion

    Andy, Mar 23, 2019
    Replies:
    18
    Views:
    2,222
    JaimeS
    Mar 25, 2019
  5. Hutan

    What do we want ME care to look like?

    Hutan, Aug 30, 2018
    Replies:
    18
    Views:
    3,409
    Webdog
    Nov 13, 2018
  6. Suffolkres

    Healthwatch England - Resource for Campaign Assistance

    Suffolkres, Jan 16, 2019
    Replies:
    17
    Views:
    1,698
    bobbler
    Dec 17, 2023
  7. livinglighter

    Class Action Lawsuit/Group Litigation/Inquiry for pwME

    livinglighter, Jul 5, 2023
    Replies:
    17
    Views:
    1,354
    livinglighter
    Jul 7, 2023
  8. InitialConditions

    Harvard Health CFS website content

    InitialConditions, Jul 5, 2020
    Replies:
    17
    Views:
    1,986
    Amw66
    Dec 21, 2021
  9. Dr Carrot

    How do we make sure ME prevelance numbers are as accurate as possible?

    Dr Carrot, Apr 21, 2018
    Replies:
    17
    Views:
    2,275
    Webdog
    Feb 13, 2020
  10. Sly Saint

    Chronic fatigue tests being sold online

    Sly Saint, May 20, 2019
    Replies:
    16
    Views:
    1,852
    Sly Saint
    Dec 19, 2021
  11. rvallee

    Do we actually know if the NIH funding is being spent?

    rvallee, Oct 26, 2018
    Replies:
    16
    Views:
    2,112
    Wilhelmina Jenkins
    Dec 17, 2019
  12. RoseE

    2020 RNZCGP /WONCA Conference in Auckland, NZ

    RoseE, Sep 17, 2019
    Replies:
    16
    Views:
    1,839
    RoseE
    Sep 25, 2019
  13. Robert 1973

    #MEAction: A response to Dr Mark Porter’s article about ME in The Times

    Robert 1973, Mar 25, 2019
    Replies:
    16
    Views:
    2,736
    Suffolkres
    Mar 27, 2019
  14. Dx Revision Watch

    ME Association: iterations of objectives between 2021 and 2023

    Dx Revision Watch, Sep 15, 2023
    Replies:
    15
    Views:
    881
    Sean
    Sep 18, 2023
  15. Simone

    Emerge Australia Health and Welfare Survey results

    Simone, Sep 30, 2018
    Replies:
    15
    Views:
    1,583
    Tom Kindlon
    Oct 15, 2018
  16. Adam pwme

    New Video: Chronic Fatigue Syndrome is a terrible name

    Adam pwme, Jan 11, 2023
    Replies:
    14
    Views:
    1,439
    DokaGirl
    Jan 12, 2023
  17. leokitten

    Politico: He Was Given 6 Months to Live. Then He Changed D.C. (Brian Wallach ALS)

    leokitten, Jan 18, 2022
    Replies:
    14
    Views:
    1,522
    Jaybee00
    Feb 7, 2022
  18. AllenJB

    The $100 million challenge

    AllenJB, Nov 3, 2019
    Replies:
    14
    Views:
    1,143
    rvallee
    Nov 4, 2019
  19. RuthT

    Thunderclap on Thursday re TEDX Bristol

    RuthT, Oct 30, 2017
    Replies:
    14
    Views:
    2,483
    RuthT
    Oct 31, 2017
  20. Andy

    My opinion on the topic “angry posts by patients on social media are harmful and something should be done about it”

    Andy, Feb 23, 2022
    Replies:
    13
    Views:
    1,118
    DigitalDrifter
    Feb 23, 2022
Showing threads 61 to 80 of 204

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