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General Advocacy Discussions

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  1. Simone

    Butterfly symbol for ME/CFS

    Simone, Jan 6, 2023 ... 2
    Replies:
    28
    Views:
    2,620
    Simone
    Jan 8, 2023
  2. CRG

    UK:(England)Department of Health & Social Care, Ministers 12/2022

    CRG, Dec 15, 2022
    Replies:
    1
    Views:
    915
    Shadrach Loom
    Dec 15, 2022
  3. Andy

    Reporting on chronic, and particular energy-limiting, conditions - Ed Yong

    Andy, Sep 29, 2022
    Replies:
    1
    Views:
    1,116
    Sly Saint
    Sep 29, 2022
  4. bobbler

    Valerie Eliot Smith blog (6th Sept) - 'stepping back'

    bobbler, Sep 15, 2022
    Replies:
    7
    Views:
    1,367
    DokaGirl
    Sep 15, 2022
  5. Adam pwme

    Video What is ME/CFS?, 2:20 minutes, by Broken Battery.

    Adam pwme, Sep 11, 2022 ... 2
    Replies:
    25
    Views:
    3,640
    Adam pwme
    May 25, 2023
  6. MittEremltage

    Why use Forget Me Not as a symbol for ME?

    MittEremltage, May 12, 2022 ... 2
    Replies:
    24
    Views:
    2,209
    Wonko
    May 14, 2022
  7. Andy

    WebMD: Even Women Doctors Find Their Symptoms Aren’t Taken Seriously

    Andy, Apr 15, 2022
    Replies:
    4
    Views:
    962
    Arnie Pye
    Apr 16, 2022
  8. Hoopoe

    Postexertional Malaise Syndrome?

    Hoopoe, Apr 12, 2022 ... 2
    Replies:
    27
    Views:
    2,219
    JemPD
    Apr 13, 2022
  9. Dolphin

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Dolphin, Apr 8, 2022 ... 2 3
    Replies:
    57
    Views:
    5,915
    bobbler
    Nov 11, 2023
  10. CRG

    Freedom of Information UK

    CRG, Apr 7, 2022
    Replies:
    0
    Views:
    781
    CRG
    Apr 7, 2022
  11. Hoopoe

    A practical way to get more high quality research into ME/CFS and specialized care

    Hoopoe, Mar 11, 2022
    Replies:
    1
    Views:
    899
    Samuel
    Mar 14, 2022
  12. Andy

    My opinion on the topic “angry posts by patients on social media are harmful and something should be done about it”

    Andy, Feb 23, 2022
    Replies:
    13
    Views:
    1,118
    DigitalDrifter
    Feb 23, 2022
  13. Samuel

    The order of magnitude is off — ME/CFS is a human rights issue

    Samuel, Feb 20, 2022
    Replies:
    8
    Views:
    1,475
    Trish
    Apr 26, 2022
  14. Florence

    Looking for authoritative explainer of cognitive dysfunction

    Florence, Feb 16, 2022
    Replies:
    5
    Views:
    936
    Hutan
    Mar 11, 2022
  15. DigitalDrifter

    Help Me Write A Quantum Leap Episode About ME

    DigitalDrifter, Feb 11, 2022
    Replies:
    13
    Views:
    1,181
    DigitalDrifter
    Feb 18, 2022
  16. Arvo

    Coining a term for being limited in your interrelated energy and time.

    Arvo, Feb 11, 2022 ... 2
    Replies:
    23
    Views:
    2,069
    Arvo
    Feb 25, 2022
  17. InitialConditions

    The Most Underfunded Disease at the NIH (Advocacy video by Winston Blick)

    InitialConditions, Feb 3, 2022
    Replies:
    4
    Views:
    1,607
    NelliePledge
    Dec 3, 2022
  18. Wyva

    Contacting researchers

    Wyva, Jan 31, 2022
    Replies:
    6
    Views:
    854
    Wyva
    Feb 7, 2022
  19. Lidia Thompson

    Request for information regarding comparisons with ME/CFS and Long Covid

    Lidia Thompson, Jan 24, 2022 ... 2
    Replies:
    23
    Views:
    2,430
    Hutan
    Jul 31, 2022
  20. leokitten

    Politico: He Was Given 6 Months to Live. Then He Changed D.C. (Brian Wallach ALS)

    leokitten, Jan 18, 2022
    Replies:
    14
    Views:
    1,522
    Jaybee00
    Feb 7, 2022
Showing threads 21 to 40 of 204

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