World ME awareness day May 12, 2025

[ahimsa]

I posted this in the news from #MEAction forum but I thought I'd also post it here.

Executive director Laurie Jones sent out an email update that includes photos / videos:

Update from #MEAction on Millions Missing 2025

 

[Yann04]

Photo gallery of the German Protests. Looks good.
https://www.fatigatio.de/aktuelles/...ddemo-berlin-hamburg-mecfs-awareness-day-2025

 

[Dolphin]

ME Association

Stacey Hollings performs a touching interpretation of 'This is Me' from The Greatest Showman to raise awareness of ME/CFS

Credit: This is ME Cover The Greatest Showman Words and Music by Benj Pasek and Justin Paul

 

[ahimsa]

#MEAction sent out another update (text for link is from the email subject line):

#MillionsMissing 2025: SOS - The Signal Was Sent!

Lots more photos and videos - from the protest in DC, from folks who posted from home, and from other countries.

Also updates on meetings with congress, more signatures on the #MEAction letter to NIH, the fight to save Medicaid from budget cuts, and more.

 

[Cinders66]

A worthwhile X thread on myth busting, that dominated UK “action”. https://twitter.com/user/status/1923433016296145014

 

[Ravn]

A worthwhile X thread on myth busting, that dominated UK “action”.

The websites linked in the twitter post are highly recommended reading for advocates because it’s even worse than myth-busting simply not working:

Research and experience show that this [myth busting] only results in deepening the myth in our audiences’ minds. The repetition of misinformation can cause us to better remember it, but we won’t necessarily remember that it was wrong information.

https://opportunityagenda.org/messaging_reports/telling-an-affirmative-story/