As a society in the developed world we are eating more calories per portion, are having more eating occasions (snacks etc) and burning a lot less calories by leading more sedentary lives. I think refined carbs are sited as a problem mainly because they are the cheapest element so are found at high levels in the more consumer popular convenience foods (price driven). So the issue isn't food type avoidance it's more about eating less of everything which will bring the overall carbs down. In other words, if the overall calorie consumption is reduced to match calories out, the refined CHO problem miraculously becomes less of a problem.
For people with ME I suspect that there is in part a problem with glucose metabolism in terms of symptoms etc, but being sedentary and eating too many overall calories probably doesn't help (not that there is anything we can do about the sedentary bit). For me I put on 30lb in the 6 months after getting ill. That is extra weight I'm carrying around. This seems a little silly when I can't even carry a light shopping basket around the store for more than 5 minutes without getting PEM.
I've been looking at what I eat for a while, but recently I have been looking at portion sizes and meal occasions. I seem to need around 1600-1900 calories per day. I'm mild/moderate doing around 2000-3000 steps per day (6 ft male). I was definitely overeating (2000-2300) for the calories I was burning (around 150-250 exercise calories). Since reducing carbs to under 150g, my gut problems (IBS type with acid indigestion) have reduced significantly. However I have also now reduced overall calories and this has improved things further. (Not one instance of IBS since October when this was a daily occurrence). This may be something else of course (reduced histmaine?) and I realise that loads of PWME have lots of other digestive complaints due to sensitivities etc. and this can actually lead to weight loss.
I do agree with earlier postings that eating more than we use can waste valuable ATP on digestion (moving metabolites around, secreting enzymes/acid, liver metabolism etc etc) that could be used for other things.
The problem is, when energy is low we are programmed to crave the foods that give us the quickest boost/conversion to energy ... sugar or flour based products. So the natural inclination is to reach for sugary foods (well it was for me anyway). I include fruit or dried fruit in terms of sugary foods. this is effectively boom or bust as others have mentioned. So I think glycemic index of foods is important for some of us.
There have been plenty of studies showing that foods rich in protein and fibre (nuts, pulses etc) can stabilise cravings by making you feel fuller for longer and reduce snacking ...so grabbing a controlled amount of these, or incorporating them into a main meal should help (watch the nuts ...25g is a 120-140 calorie portion not 100g otherwise you blow your calories for the day). I've found salted almonds to be particularly good, but I weigh them following
@Tom Kindlon advice.
Bit off track but thought I would mention it. Realised I've rambled a bit. I can repost this in the weight loss thread if it's too off topic.