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Why has 'persistent enteroviral infection' been dropped as a research strand in ME/CFS? (Jen Brea asking)

Discussion in 'General ME/CFS news' started by Sasha, Jul 11, 2018.

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Page 13 of 13
  1. Pyrrhus

    Pyrrhus Established Member (Voting Rights)

    Messages:
    37
    Location:
    U.S., Earth
    Dr. Chia has predicted that the Rega drugs will enter human trials in 1-2 years.

    Even if he is correct, the drug would face a long road and long odds to approval.

    Don’t get your hopes up just yet...
     
    Pyrrhus, Jan 13, 2019
    #241
    andypants and Roy S like this.
  2. Pyrrhus

    Pyrrhus Established Member (Voting Rights)

    Messages:
    37
    Location:
    U.S., Earth
    The theory is based on a persistent enteroviral infection of the central nervous system.

    If you’re interested in some of the issues surrounding the question of enteroviral persistence, I am attaching the slides of a small talk I gave at Berkeley a couple of years ago. Although the talk was about Enterovirus 71, not about ME/CFS, I did cover the question of persistence in some detail. (For privacy reasons, I have removed my name from the slides.)

    Hope this helps.
     

    Attached Files:

    Pyrrhus, Jan 13, 2019
    #242
    MyalgicE, hinterland, Amw66 and 10 others like this.
  3. Sisyphus

    Sisyphus Senior Member (Voting Rights)

    Messages:
    458
    Yes, in my current state that’s the level of simplicity I need.
     
    Sisyphus, Jan 13, 2019
    #243
    Pyrrhus and andypants like this.
  4. belbyr

    belbyr Established Member (Voting Rights)

    Messages:
    99
    This is my test result:

    My main symptoms are abdominal. (Nausea, abdominal pain, bloating, IBS) also have some fatigue, muscle aches, headaches, and POTS.


    [​IMG]
     
    Last edited: Apr 16, 2019
    belbyr, Apr 15, 2019
    #244
    Pyrrhus, Aroa, mariovitali and 3 others like this.
  5. Inara

    Inara Senior Member (Voting Rights)

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    2,734
    Which lab did that test?
     
    Inara, Apr 16, 2019
    #245
  6. Hip

    Hip Senior Member (Voting Rights)

    Messages:
    726
    Dr Chia's own lab is the only one which provides this enterovirus testing of stomach biopsy samples.
     
    Hip, Apr 16, 2019
    #246
    Inara and Aroa like this.
  7. mariovitali

    mariovitali Senior Member (Voting Rights)

    Messages:
    500
    @Hip

    I am trying to find more about enteroviruses and more specifically about treatment options. Could you post here some useful links when it comes to enterovirus treatment please? What i seem to be finding so far is that there is no specific treatment for this kind of infection.
     
    mariovitali, Apr 16, 2019
    #247
    Perrier likes this.
  8. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,926
    Location:
    Aotearoa New Zealand
    Some discussion around whether Hip is allowed to answer mariovitali's question has been deleted.

    Hip, or anyone, is free to answer the question. The only requirement is that the reply not be in breach of rules, specifically Rule 5 - No medical advice.

    Hip started a thread on Rule 5 here, which gives some useful background. The aim of the rule and the moderation team's interpretation of it is not to stifle discussion, but simply to help keep people safe.
     
    Last edited by a moderator: Apr 16, 2019
    Hutan, Apr 16, 2019
    #248
    Amw66, ME/CFS Skeptic, Barry and 3 others like this.
  9. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,385
    The irony being they can nonetheless be a positive contribution to science in their way.
     
    Barry, Apr 16, 2019
    #249
    rvallee, adambeyoncelowe, Aroa and 2 others like this.
  10. Amw66

    Amw66 Senior Member (Voting Rights)

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    6,330
    If negative studies are not published, how much time and money is wasted reinventing wheels ?
    How many aspects pursued that could have been better informed?

    Negative results and mistakes offer insights . Is it ego that denies their important role?
     
    Amw66, Apr 17, 2019
    #250
    Sarah94, Keebird, Barry and 3 others like this.
  11. Wonko

    Wonko Senior Member (Voting Rights)

    Messages:
    6,684
    Location:
    UK
    People need to know that square wheels are much safer.

    Almost no road accidents involved vehicles with square wheels in 2017.

    But this information is being deliberately suppressed by vested interests who found that square tires cost much more to produce, so deemed the trail unsuccessful and didn't publish.

    Meanwhile people make a good living off the carnage caused by round wheels.
     
    Wonko, Apr 17, 2019
    #251
    pteropus, Barry, adambeyoncelowe and 3 others like this.
  12. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,309
    I am so reminded of this clip (that starts with ambulance/police noises)

    https://www.youtube.com/watch?v=fm2W0sq9ddU


     
    Alvin, Apr 17, 2019
    #252
    rvallee, adambeyoncelowe and Wonko like this.
  13. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,385
    I suspect it's journalistic drama that journals typically want to publish, to bolster their publication's kudos and circulation figures. Negative studies likely seen as boring and of little value to the journal or authors. Adding to the pool of scientific knowledge probably counts for a gnat's whisker of b*gger all.
     
    Barry, Apr 17, 2019
    #253
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