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Why has 'persistent enteroviral infection' been dropped as a research strand in ME/CFS? (Jen Brea asking)

Discussion in 'General ME/CFS News' started by Sasha, Jul 11, 2018.

  1. Pyrrhus

    Pyrrhus Established Member (Voting Rights)

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    Dr. Chia has predicted that the Rega drugs will enter human trials in 1-2 years.

    Even if he is correct, the drug would face a long road and long odds to approval.

    Don’t get your hopes up just yet...
     
    andypants and Roy S like this.
  2. Pyrrhus

    Pyrrhus Established Member (Voting Rights)

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    The theory is based on a persistent enteroviral infection of the central nervous system.

    If you’re interested in some of the issues surrounding the question of enteroviral persistence, I am attaching the slides of a small talk I gave at Berkeley a couple of years ago. Although the talk was about Enterovirus 71, not about ME/CFS, I did cover the question of persistence in some detail. (For privacy reasons, I have removed my name from the slides.)

    Hope this helps.
     

    Attached Files:

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  3. Sisyphus

    Sisyphus Senior Member (Voting Rights)

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    Yes, in my current state that’s the level of simplicity I need.
     
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  4. belbyr

    belbyr Established Member

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    This is my test result:

    My main symptoms are abdominal. (Nausea, abdominal pain, bloating, IBS) also have some fatigue, muscle aches, headaches, and POTS.


    [​IMG]
     
    Last edited: Apr 16, 2019
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  5. Inara

    Inara Senior Member (Voting Rights)

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    Which lab did that test?
     
  6. Hip

    Hip Senior Member (Voting Rights)

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    Dr Chia's own lab is the only one which provides this enterovirus testing of stomach biopsy samples.
     
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  7. mariovitali

    mariovitali Senior Member (Voting Rights)

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    @Hip

    I am trying to find more about enteroviruses and more specifically about treatment options. Could you post here some useful links when it comes to enterovirus treatment please? What i seem to be finding so far is that there is no specific treatment for this kind of infection.
     
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  8. Hutan

    Hutan Moderator Staff Member

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    Some discussion around whether Hip is allowed to answer mariovitali's question has been deleted.

    Hip, or anyone, is free to answer the question. The only requirement is that the reply not be in breach of rules, specifically Rule 5 - No medical advice.

    Hip started a thread on Rule 5 here, which gives some useful background. The aim of the rule and the moderation team's interpretation of it is not to stifle discussion, but simply to help keep people safe.
     
    Last edited by a moderator: Apr 16, 2019
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  9. Barry

    Barry Senior Member (Voting Rights)

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    The irony being they can nonetheless be a positive contribution to science in their way.
     
  10. Amw66

    Amw66 Senior Member (Voting Rights)

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    If negative studies are not published, how much time and money is wasted reinventing wheels ?
    How many aspects pursued that could have been better informed?

    Negative results and mistakes offer insights . Is it ego that denies their important role?
     
  11. Wonko

    Wonko Senior Member (Voting Rights)

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    People need to know that square wheels are much safer.

    Almost no road accidents involved vehicles with square wheels in 2017.

    But this information is being deliberately suppressed by vested interests who found that square tires cost much more to produce, so deemed the trail unsuccessful and didn't publish.

    Meanwhile people make a good living off the carnage caused by round wheels.
     
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  12. Alvin

    Alvin Senior Member (Voting Rights)

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    I am so reminded of this clip (that starts with ambulance/police noises)
     
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  13. Barry

    Barry Senior Member (Voting Rights)

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    I suspect it's journalistic drama that journals typically want to publish, to bolster their publication's kudos and circulation figures. Negative studies likely seen as boring and of little value to the journal or authors. Adding to the pool of scientific knowledge probably counts for a gnat's whisker of b*gger all.
     

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