Whitney Dafoe Updates

[MrMagoo]

I'm not. Makes my heart race and miss beats, and keeps me awake at night.

Three years without it was torture. 100mg after waking stops me from going back to bed.
It won’t work for everyone, that’s the difference between me and a shill, I don’t start dictating what others should do just based on my own experience!
I think it’s fine if the BF thing helped him, or he thinks it did. Not any of us are where he was. I doubt the NHS will start offering BF and as Peter T says, it’s too difficult a protocol for the average pwME to manage without significant assistance and care.
However, bringing in Ron Davis as the authority who says the biology checks out is a step too far.

 

[MeSci]

Whitney's "chocolate fix" journey started several months ago.

I don't like sugar, or rather the effects of sugar (racing pulse), and I have Plamil sugar-free chocolate. It's delicious, although I wouldn't eat a lot because it contains xylitol instead of sugar, and that is laxative in large amounts.

 

[ChronicallyOverIt]

Joshua Leisk spoke at the community symposium for OMF so to say there isn’t influence or separation is wrong. This is directly effecting OMF. I cannot remember but I believe Rengade Research has had lightning talks? Can anyone find that?

 

[Kitty]

At least they put him on while everyone was still getting their coffee, checking their phone, or thinking up an excuse for being late.

 

[ChronicallyOverIt]

I’m upset, a n=1 experiment is driving a supposedly science based charitie. I don’t donate to OMF for personal pet theories to get air time. I’m going to reach out, this seems against the founding of OMF.

It also just devalues any legitimacy to other work in the field if this who is getting stage time.

 

[OrganicChilli]

I’m upset, a n=1 experiment is driving a supposedly science based charitie. I don’t donate to OMF for personal pet theories to get air time. I’m going to reach out, this seems against the founding of OMF.

It also just devalues any legitimacy to other work in the field if this who is getting stage time.

Whitney is completely delusional. He claims Leisk has a good biomedical understanding of PEM. He's now also one of those people who support the idea that our nervous system is acting up.

 

[ChronicallyOverIt]

Whitney is completely delusional. He claims Leisk has a good biomedical understanding of PEM. He's now also one of those people who support the idea that our nervous system is acting up.

He can believe what ever he wants! What is upsetting is OMF is giving this a stage.

 

[Yann04]

. He's now also one of those people who support the idea that our nervous system is acting up.

Urgh.
I hate how common that belief has gotten. Feeds right into the brain retraining / meditation as treatment pipeline.

 

[NelliePledge]

I'm not. Makes my heart race and miss beats, and keeps me awake at night.

Yep seconded.

When I didn’t know I had ME I pushed through at work for years using strong coffee and sugary snacks eventually I had to give up both due to the resulting insomnia