What's the main MECFS org in Canada?

[Saz94]

Friend is in Canada, has ME/CFS. What's the Canadian equivalent of the ME Association or #MEAction and is it any good? i.e. providing information about the dangers of pushing yourself to exercise beyond your normal abilities.

 

[DokaGirl]

Hi @Sarah94.

This is one of the national ME organizations in Canada:

https://www.mefmaction.com/


This is another Canadian national ME organization:

https://millionsmissingcanada.ca/

There are also provincial, and possibly ME organizations in the territories as well.

I don't know if each province has an organization, but the national groups could let your friend know about that.

Hope this helps.

 

[Hutan]

We have this thread, which has the two organisations that DokaGirl mentioned and a couple of others:
ME/CFS and Long Covid charities/ organisations - International and National
There's a link there to a thread with Canadian regional organisations.

 

[Saz94]

Thank you.

 

[Milo]

Friend is in Canada, has ME/CFS. What's the Canadian equivalent of the ME Association or #MEAction and is it any good? i.e. providing information about the dangers of pushing yourself to exercise beyond your normal abilities.

Will PM you

 

[former_2xWrencher]

Will PM you

Hello, can you PM me as well? I have reached out to provincial ME orgs and have received no response. Really struggling to find resources. TYA

 

[Milo]

Hello, can you PM me as well? I have reached out to provincial ME orgs and have received no response. Really struggling to find resources. TYA

There is a Facebook group called Myalgic Encephalomyelitis Canada. Join and it will give you access to info and resources available, and you can start discussions if you do not find answers.