What are the experiences of people living with functional movement disorders(FMD)? An Interpretative Phenomenological Analysis study, 2019, Dosanjh

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Source: University of Leeds Date: November 1, 2019 URL: http://etheses.whiterose.ac.uk/25082/

http://etheses.whiterose.ac.uk/25082/1/Dosanjh_MKD_DClinPsychol_PhD-2019.pdf

What are the experiences of people living with functional movement disorders(FMD)? An Interpretative Phenomenological Analysis study
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Mandip Kaur Dosanjh - Academic Unit of Psychiatry and Behavioural Sciences, Institute of Health Sciences, Faculty of Medicine and Health, University of Leeds

Abstract

Introduction Functional neurological disorders (FND) are medical conditions that involve problems with the functioning of the nervous system. Functional movement disorders (FMD) are a subcategory of FND. Qualitative research in this area has been limited, meaning we have a limited understanding of the subjective experience of living with FMD. This research aimed to address this gap.

Method Eight participants with FMD were interviewed using semi-structured interviews. Data was analysed using interpretative phenomenological analysis.

Results Three superordinate themes and fourteen subordinate themes were identified. 'Unexpected and progressive losses': participants experienced many losses (e.g. bodily control, identity) as a result of having FMD. Their distress was compounded by a period of uncertainty whilst trying to get a diagnosis and unhelpful interactions with healthcare professionals. 'False dawns': participants had positive diagnosis experiences, although they felt a diagnosis did not change anything and they perceived treatment options to be unsuccessful. 'Living with 'it'': participants still experienced a loss of control of the body. Some participants did not feel better and had not yet accepted living with FMD, whereas others felt better and had accepted living with FMD.

Discussion The findings are consistent with qualitative research on other neurological disorders (Parkinson's disease and multiple sclerosis) and medically unexplained conditions (chronic fatigue syndrome and non-epileptic seizures). Novel findings for the FMD evidence-base are: conceptualisation of identity, sense of separateness from body part(s) affected, experiences of self-blame, shame and embarrassment, fear of losing one's mind, the belief of being judged negatively by others, working in a positive diagnostic framework and processes involved in acceptance. The findings may facilitate a more accurate understanding of patients' experiences of FMD that could be used to inform healthcare, emphasising the importance of a timely diagnosis, developing a warm therapeutic relationship and suggesting the application of third-wave cognitive behavioural therapy approaches.

-------- (c) 2019 University of Leeds
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The findings are consistent with qualitative research on other neurological disorders (Parkinson's disease and multiple sclerosis)
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Both of which would still be listed as FND had it been more difficult to find objective evidence. Adding yet more evidence of a category error, the error being the creation of an arbitrary and illusionary category based on superficial misunderstanding.

Meanwhile the literature on FND and discussion among peers remain very blunt in defining this category as equivalent to conversion disorder, hysteria and other typical category errors. Same. But different. But still same.
 
alktipping said:
what the hell is third wave cognitive approaches are they actually suggesting prior cognitive approaches do not work .
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Apparently, psychobabble slightly different from other types of psychobabble and also totally not the thing Eysenck was talking about it's just a coincidence that he thought the same thing!
Third wave therapies prioritize the holistic promotion of psychological and behavioral processes associated with health and well-being over the reduction or elimination of psychological and emotional symptoms, although that typically is a “side-benefit.”
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I guess that must be mindfulness, or something like it.

It's not magic, it's just indistinguishable from it. There is no spoon, only sporks.
 
Third wave therapies prioritize the holistic promotion of psychological and behavioral processes associated with health and well-being over the reduction or elimination of psychological and emotional symptoms, although that typically is a “side-benefit.”
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:rofl: Brilliant - so 'success' is getting people to use their colouring books every day; it's now besides the point whether that makes them feel any better.

So sort of what was happening before, but without the bother of trying to prove that the interventions actually help.
 
I have no idea but I wonder if the creators of the new-fangled methods in delivering psychological therapies understand that they are drifting ever closer to rather oppressive forms of social engineering?

Under the guise of helping. Always the irony with this lot.
 
Hutan said:
:rofl: Brilliant - so 'success' is getting people to use their colouring books every day; it's now besides the point whether that makes them feel any better.

So sort of what was happening before, but without the bother of trying to prove that the interventions actually help.
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It pretty much exactly reads like putting a band-aid and ignoring the cause entirely. Given this, giving people free drugs, the recreative kind, would actually produce better results. They may be just as sick, but they'd definitely be thinking happy thoughts.

Absurd that this is the very thing these people will denounce about most medical care, failing to understand that it's because medicine is almost entirely focused on acute care and has neglected chronic illness for too long. So as a solution they propose more of the thing they denounce, just worse, more expensive, more insulting and way less effective.

Adopting the language of alternative medicine, "holistic" and all that, without actually believing it surprisingly does not solve anything, it merely blends the worst of both in a package where everyone ends up worse off while costing more money.

At some point maybe they'll listen to the patients instead, the actual substance of what we say, rather than treat us as whiny noise. But I think it's more likely that it will be forced into practice instead. Hindsight will validate that choice anyway.
 
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