Wales Online: This woman from Cardiff has been trapped in her bed for more than ten years

Indigophoton

Indigophoton

Senior Member (Voting Rights)
A mother has been left bedbound for more than 10 years by ME so severe at times she is not even able to talk.

Former nursery manager Carol Davis used to be an active person who loved travelling, shopping, and going to parties.

But that all changed when she was struck down with myalgic encephalomyelitis, more commonly known as ME, which she claims has left her unable to leave her house.

The 54-year-old said the fatigue caused by her condition was sometimes so severe that she cannot talk, walk, and needs to use a commode.
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Carol, who lives in the Coryton area of Cardiff.
Click to expand...

https://www.walesonline.co.uk/news/health/woman-cardiff-been-trapped-bed-14575717.amp
 
‘Carol, who said ME is a physical rather than mental condition’

I wish we could stop referring to this at all. By mentioning it, its putting that idea back into people’s heads every time. Instead of just talking about it like the physical illness it is.

We don’t hear people with other physical illnesses (usually) say it ‘its physical rather than mental’ That term is not even considered.

By referring to this notion each time, we’re just keeping that idea/question fresh in people’s minds.

‘She said she has not been offered Graded Exercise Therapy (GET) or Cognitive Behavioral Therapy (CBT)’

This phrase makes it sound like she’s hard done by ‘because’ she hasn’t been offered these therapies. Instead of lucky.

I’m sick of the name of these therapies being squeezed into and contaminating our ME articles.

Hopefully this will slowly change but for the average person out there, most times they read something about ME, those therapies are getting advertised to them each time and leaving an imprint in their psyche.

I wish we could just move away from the whole mental aspect in our raising awareness. By us mentioning it constantly its just keeping it alive and fresh.
 
I am unsure about the effect of this article on the 'ignorant' reader.

I am very grateful to Carol, the subject of the article for being willing to share her story in public like this and I wish her improved health. She has for many years, and clearly continues to suffer very badly.

My hesitation is in the tone that the journalist has given to the article. It's full of 'she says...', she claims...', 'she believes...', 'she is afraid to...' all of which has the possibility of sowing seeds of doubt in the sceptical reader's mind.
 
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