1. Guest, the 'News in Brief' for the week beginning 12th October 2020 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Video: "After Unrest"

Discussion in 'General ME/CFS News' started by Indigophoton, Apr 23, 2018.

  1. Indigophoton

    Indigophoton Senior Member (Voting Rights)

    Messages:
    849
    Likes Received:
    9,764
    Location:
    UK
    This was retweeted by @JenB,
     
    DokaGirl, Dolphin, Hutan and 14 others like this.
  2. Melanie

    Melanie Senior Member (Voting Rights)

    Messages:
    439
    Likes Received:
    2,360
    I just watched this and it was very good. :emoji_clap::emoji_thumbsup::emoji_ok_hand:
     
    MeSci, Dolphin, Hutan and 9 others like this.
  3. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    1,317
    Likes Received:
    9,736
    I think Ketra Wooding is active on the HRM site, alongside her mother Adrienne. I thought they were both severe but presumably Ketra has improved.

    EDIT: I just started watching the video. Ketra is actually severely ill and lives in a nursing home.
     
    Last edited: Apr 23, 2018
    MeSci, Hutan, Simone and 5 others like this.
  4. Trish

    Trish Moderator Staff Member

    Messages:
    26,383
    Likes Received:
    129,439
    Location:
    UK
    What is that?
     
    alktipping, Joh, Melanie and 2 others like this.
  5. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    1,317
    Likes Received:
    9,736
    Sorry- Pacing with a heart rate monitor Facebook group.

    It's a very good site, informative files and knowledgeable participants. I am presuming that the Ketra Wooding named on the Jen Brea tweet above is the Ketra Wooding on that site.
    Adrienne Wooding lives in Australia and I think Ketra does too.


    EDIT:Correct title is actually " Pacing with a Heart Monitor".

    It is the same Ketra. She is narrator for the video.
     
    Last edited: Apr 23, 2018
    MeSci, Hutan, Simone and 7 others like this.
  6. Gingergrrl

    Gingergrrl Senior Member (Voting Rights)

    Messages:
    637
    Likes Received:
    4,032
    I just watched this video and agree that it is very well-done. It was interesting because the doctors in the video spoke about the calcium channelopathy theory (as if they had proof unless I misunderstood them?) and also spoke about the connection to mast cell activation. I get so confused re: my diagnosis b/c I match so much of what they described in the video, including that 10-minute lean test and POTS. I wish there was a team like that in the US with their particular research focus and I'd love to talk to them further!
     
    MeSci, Simone, Amw66 and 3 others like this.
  7. Alice

    Alice Established Member (Voting Rights)

    Messages:
    41
    Likes Received:
    135
    Yep, the calcium channelopathy theory appears pretty solid and new research findings by others are all fitting in with the theory. Chemical, food and sensory sensitivities appear almost overlooked by many of the researchers which is odd given how key these are to the condition especially in the severely ill.
     
    MeSci, Gingergrrl and Trish like this.

Share This Page