In our world, a lot of the money going into medical research comes from private charities run by extremely wealthy people. Since news related to these charities usually don’t warrant their own thread, I’m creating this catch-all one. There has been a little talk in the ME/LC community in creating a project to pitch to Melinda Gates’ charity, Pivotal Ventures. Whitney Dafoe also tried to pitch Elon Musk to invest into ME/CFS.
News: Warren Buffet has created a 100 billion USD charity. It is unclear what the money will be spent on. https://www.axios.com/2024/07/01/warren-buffett-pledge-100-billion
Warren Buffet was great at making money—not so good at giving it away. Between the lines: Buffett's three children don't make for natural charitable bedfellows. Susie, 71, runs the Sherwood Foundation, which is focused on Nebraska. Peter, 66, runs the NoVo Foundation, which "supports initiatives that promote a holistic, interconnected and healing vision for humanity," especially in the small town of Kingston, NY. Howie, 69, runs the Howard G Buffett Foundation, whose home page features a lot of armed soldiers. He has also spent a lot of time and money arming — and patrolling with — the border policein Cochise County, Arizona. The intrigue: Buffett has charged his children with "responding to any future changes to the laws governing taxes and foundations" — but has seemingly given them little if any guidance on the giving-money-away part of their new job.
Give their interests, and that the article mentions they are the ones who will unanimously decide what the money goes into, I’m guessing not much will be spent on health unfortunately. I’d wager it’ll mostly go into border security and rural infrastructure or something.
yes i think if you look at the overall picture of reasons to give/where money is directed, we humans usually all give to causes that have actually touched us personally - ie significantly negatively impacted us, or people we love. I dont think billionaire humans are any different than poor ones in that regard. so we await, Elon, Buffet, Gates etc either getting ME/CFS/LC themselves or someone they love doing so - and, crucially, NOT appearing to be significantly helped by the quackery or unproven treatments given by private Drs. Its the 'no help, no treatment, etc' that tends to move people i think.
Micheal Bloomberg donates 1 billion to John Hopkins University. “As the U.S. struggles to recover from a disturbing decline in life expectancy, our country faces a serious shortage of doctors, nurses, and public health professionals – and yet, the high cost of medical, nursing, and graduate school too often bars students from enrolling,” Bloomberg said in a press release. https://thehill.com/policy/healthcare/4761067-1-billion-gift-free-medical-school-johns-hopkins/
Khosla—curing MECFS, which his daughter has is not included in the video. https://twitter.com/user/status/1817652944252379257 I turn seventy in the next six months and since I have everything I could possibly need, especially my family, I am really excited to be on the following mission for the next twenty years! Besides, I think you grow old when you retire and not retire when when you grow old. Seen such rapid decline in so many of my cohort once they retire!
https://www.nytimes.com/2024/08/04/...e_code=1.AU4.C8Yn.PCXZHr_ygJek&smid=url-share Has the Long Friendship of Bill Gates and Warren Buffett Reached Its Final Act? Growing tensions between the two billionaires, over issues both substantive and stylistic, have roiled the world of philanthropy. I think this article is not so great..some speculation and not many actual concrete facts.
