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Updates from the UK ME/CFS Biobank

Discussion in 'BioMedical ME/CFS News' started by Andy, Feb 14, 2018.

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  1. Trish

    Trish Moderator Staff Member

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    Sounds great. I hope it gets lots of viewing. But shame on the BBC for only putting it on iPlayer, not on a main channel. Great to hear they will be able to promote it on the BBC radio and TV. So pleased the Biobank team are taking a lead role in this - they are the biggest biomedical ME research team in the UK, as far as I know.
     
  2. Daisybell

    Daisybell Moderator Staff Member

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    Can iplayer be accessed from overseas?
     
  3. Andy

    Andy Committee Member & Outreach

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    I understand that it's because it's being produced by BBC Newsbeat, which focuses on content for 18-24 year olds, and they, BBC Newsbeat, focus on releasing their output via iPlayer.
     
  4. TiredSam

    TiredSam Moderator Staff Member

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    Not any more, sadly, since they started blocking VPNs. Or at least, I haven't found a way :(.
     
  5. Andy

    Andy Committee Member & Outreach

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  6. Cheshire

    Cheshire Moderator Staff Member

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  7. Andy

    Andy Committee Member & Outreach

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    The image only - interesting that it's talking about extracellular vesicles (EVs), that's something that seems to be of increasing interest recently.
    Aenjq0E.jpg
     
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  8. MeSci

    MeSci Senior Member (Voting Rights)

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    Last edited: May 10, 2018
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    I like Luis Nacul, I'm glad to hear him being interviewed more. This is what we need more of to change the narrative.
    After that they plug the newsbeat program and read out someones email and say they would like to hear from more people....
    continues around 2.04.00 with a bit more for a couple of minutes.
    Picks up again around 2.36.00 with more guests including Emma Donahoe and Jen Brea.
    eta: brilliant discussion
     
    Last edited: May 10, 2018
  10. Cheshire

    Cheshire Moderator Staff Member

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  11. Andy

    Andy Committee Member & Outreach

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    From this Facebook post


    32289546_1789636124417156_6187710047057870848_n.png
     
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  12. Skycloud

    Skycloud Senior Member (Voting Rights)

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    Now contrast the ME/CFS biobank facebook post with the Esther Crawley and BACME online efforts for ME Awareness day...
     
  13. Londinium

    Londinium Senior Member (Voting Rights)

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    Apologies if this has already been posted elsewhere (I was abroad last week, am well behind on posts :)) but Newsbeat upload most of their documentaries to Youtube. Non-UK people can find it here:

     
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  14. Cheshire

    Cheshire Moderator Staff Member

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  15. Cheshire

    Cheshire Moderator Staff Member

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  16. Andy

    Andy Committee Member & Outreach

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    Facebook post
     
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  17. Andy

    Andy Committee Member & Outreach

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  18. Andy

    Andy Committee Member & Outreach

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    Research update
    Code:
    https://www.facebook.com/mecfsbiobank/posts/1792412554139513:0
    https://www.facebook.com/mecfsbiobank/posts/1792412554139513:0
     
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  19. Andy

    Andy Committee Member & Outreach

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    Addition to the team
     
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  20. Andy

    Andy Committee Member & Outreach

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    Code:
    https://www.facebook.com/mecfsbiobank/posts/1836311526416282
     
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