1. Guest, the 'News in Brief' for the week beginning 25th May 2020 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Updates from the UK ME/CFS Biobank / CureME team

Discussion in 'BioMedical ME/CFS News' started by Andy, Feb 14, 2018.

Tags:
  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    4,573
    Likes Received:
    38,237
    Location:
    UK
    not so good for Suffolk
     
  2. Suffolkres

    Suffolkres Senior Member (Voting Rights)

    Messages:
    643
    Likes Received:
    3,257
    I know, but his appointment is for the wider more common good.
    Know anyone who wants this job?!!
     
  3. Andy

    Andy Committee Member & Outreach

    Messages:
    9,455
    Likes Received:
    68,132
    Location:
    Hampshire, UK
  4. Hutan

    Hutan Moderator Staff Member

    Messages:
    8,496
    Likes Received:
    36,624
    It will be good to have some replication of the 2018 study on this topic that was done by Unger and others.
     
    ladycatlover, MEMarge, Amw66 and 9 others like this.
  5. Andy

    Andy Committee Member & Outreach

    Messages:
    9,455
    Likes Received:
    68,132
    Location:
    Hampshire, UK
    Code:
    https://www.facebook.com/mecfsbiobank/posts/2290448331002597


     
    ladycatlover, ukxmrv, Ron and 5 others like this.
  6. Andy

    Andy Committee Member & Outreach

    Messages:
    9,455
    Likes Received:
    68,132
    Location:
    Hampshire, UK
    Code:
    https://www.facebook.com/mecfsbiobank/posts/2348822885165141


     
    Snowdrop, Hutan, ladycatlover and 8 others like this.
  7. mariovitali

    mariovitali Senior Member (Voting Rights)

    Messages:
    407
    Likes Received:
    2,216
    I am honoured and delighted to be a part of this effort.

    The CureME team during my presentation saw an opportunity in using text data they had from patient questionnaires. So after my presentation we started working on applying Named Entity Recognition (NER) to transform the text data to structured data.

    This transformation enabled us to enrich the patient data with supplement and medications information and analyse this data to see associations with symptoms and many more interesting insights. We now have the mechanism to do the same data transformation to hundreds of thousands of patient records within a few minutes !
     
    andypants, oldtimer, Kitty and 20 others like this.
  8. wigglethemouse

    wigglethemouse Senior Member (Voting Rights)

    Messages:
    660
    Likes Received:
    4,128
  9. mariovitali

    mariovitali Senior Member (Voting Rights)

    Messages:
    407
    Likes Received:
    2,216
  10. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    3,351
    Likes Received:
    15,847
    Brilliant - thank you @mariovitali
     
  11. mariovitali

    mariovitali Senior Member (Voting Rights)

    Messages:
    407
    Likes Received:
    2,216
    oldtimer, rvallee, Sly Saint and 4 others like this.
  12. Andy

    Andy Committee Member & Outreach

    Messages:
    9,455
    Likes Received:
    68,132
    Location:
    Hampshire, UK
    andypants, Hutan, MEMarge and 19 others like this.
  13. Andy

    Andy Committee Member & Outreach

    Messages:
    9,455
    Likes Received:
    68,132
    Location:
    Hampshire, UK
    Code:
    https://www.facebook.com/mecfsbiobank/posts/2468267986553963


     
    Hutan, Dolphin, andypants and 9 others like this.
  14. Andy

    Andy Committee Member & Outreach

    Messages:
    9,455
    Likes Received:
    68,132
    Location:
    Hampshire, UK
    Code:
    https://www.facebook.com/mecfsbiobank/posts/2556000604447367


     
    Annamaria, MeSci, rvallee and 4 others like this.
  15. Andy

    Andy Committee Member & Outreach

    Messages:
    9,455
    Likes Received:
    68,132
    Location:
    Hampshire, UK
    Code:
    https://youtu.be/0MjJ06dDjzM
     
    mariovitali, MeSci, rvallee and 5 others like this.
  16. mariovitali

    mariovitali Senior Member (Voting Rights)

    Messages:
    407
    Likes Received:
    2,216
    I just got back from Philadelphia and wanted to share my experience in presenting our joint effort with the CureME team. We were the first to begin the sessions on Big data and Machine Learning applied to Healthcare with Kathleen Mudie from the CureME team giving a great presentation to around 60 people. At the end i joined Kathleen to answer the technical questions on the methodology we used.

    Someone from the CDC (Centers for Disease Control and Prevention) / National Center for Health Statistics approached us after the presentation and congratulated us for presenting a "trully groundbreaking" work, saying that these technologies will transform Healthcare in several ways. Usually there is a clash between Data Miners / Data Scientists vs Statisticians because -in all fairness- most techniques used have their core to statistics but him -being a statistician- was very open regarding these techniques.

    I also had the chance to explain to him more about my work and my attempt to research ME/CFS and was waiting for his comments almost in agony because he was very keen in identifying problems in the methodologies that others presented. Again, he said that this is groundbreaking work that should be published. His very positive reactions really gave me the strength to keep trying until finally someone accepts to apply these technologies to research ME/CFS more extensively.

    I want to Thank Kate Mudie and all of the CureME team for giving me this opportunity.

    IMG_4122.jpg Screen Shot 2019-11-07 at 06.22.36.png IMG_4120.jpg
     
    AnneM, Ebb Tide, Esther12 and 15 others like this.
  17. Trish

    Trish Moderator Staff Member

    Messages:
    22,799
    Likes Received:
    112,744
    Location:
    UK

Share This Page