This thread has been formed by merging several threads This discussion has been split from this thread UK campaign for better ME services in Suffolk and Norfolk Exactly DT, in 2009, we convincingly proved our case locally for a new service (or reinstatement of the lost consultant one). We even had suitable candidates waiting in the wings..... In 2013- 2014, the new service specification was agreed by all and by proper co production. Then the Tories and the Landsley reforms kicked in,.... and the CCG shit hit the proverbial fan. (I am of DT persuasion when it comes to direct language.) Roll onto 2018, .........when we finally salvaged a little from the endless fire of meetings, formal complaints, media interest etc....... well something for Suffolk at least. Norfolk is a tad trickier but we will be having a go! MPs have been useless, local elected members have been very good and supportive. Some of them have also talked in very direct language- (which I have recorded!) I am drafting a letter as we speak, to the chair of the Norfolk & Waveney Joint Strategic Commissioning Committee (sounds very grand- JSCC) -the JSCC who have failed to answer pertinent questions put to then in August. I, not we, have received a "Strictly Private and Confidential" missive from the chair (the most highly paid CCG head in Norfolk). http://www.edp24.co.uk/news/health/norfolk-nhs-ccg-chief-paid-200-000-for-nine-months-work-1-5252287 NHS chief paid up to £200,000 for nine months work as staff costs soar at Norfolk’s Clinical Commissioning Groups PUBLISHED: 15:59 26 October 2017 | Not sure if this was in addition to above £200,000 "North Norfolk’s chair, meanwhile, Dr Anoop Dhesi, was the best paid chair of all Norfolk CCGs earning £120,000 from the CCG last year. He was given a £30,000 pay rise on the previous year." I am not the one who should have been written to thought............. as the Report was not drafted by me nor the questions put to committee by me...... So a DT Special is being prepared as an Open Letter- sent to press as well who recently published the "post code lottery" article. I will, draft in as many direct phrases and sayings as I think I can get away with, 'cos frankly, the time for pleasantries and polite talk is past!!