I stumbled upon Alex Howard's new video series on youtube yesterday. I found it really concerning.
For background: Alex Howard runs The Optimum Health clinic in London which claims to treat ME. I've don't their '90 day programme' (many years ago). They use various techniques such as the lightening process, EFT, meditation, hypnosis, positive thinking, NLP, positive psychology. And they also have nutritionists who give you very expensive advice and recommend very expensive supplements. The whole thing is very expensive. I think therapy sessions cost £90 for 40 mins over the phone.
Anyway, in these recent videos, Alex is filming 'therapy' sessions with pwME where he encourages them to give a lot of personal details. The sessions are then put on youtube for all to see. Obviously the individuals have given their consent but they've done so having been told that it will help them recover from their chronic illness. They've also presumably already invested a lot of money, time and hope in the Optimum Health Clinic and believe that it will help them.
The videos serve to advertise Alex and his business to others but I'm worried about what benefit the people in them will get long term. I think therapy can be really useful (obviously not to 'cure' ME but in general). However Alex is not qualified except for an undergraduate degree is psychology. He is an amateur psychologist/life-coach. Some of what he says is true and vaguely insightful but therapy is not about the therapist saying the right thing, it's about a relationship of trust and a dialogue that develops over time in a safe space. I fail to see how this is possible when the interaction is filmed for youtube especially as I also don't think that the youtube sessions are part of a long-term therapeutic relationship. The approach seems unethical to me.
I'm wondering if others agree with me about this and if so do you think there's anything we can do? Somewhere we can complain to? I wonder how the charities feel about it and if they can do anything?
[edited to remove link to videos as I don't want this discussion to focus on the treatment choices of any particular individuals but the approach in general.]