United Kingdom: Action for ME's PRIME project - research infrastructure

[Dolphin]

Copied from the AfME news thread
From Facebook:

We’re excited to announce our new research project ‘PRIME’ which will create infrastructure for ME research in the UK.

Starting in October 2025 PRIME is funded by the Medical Research Council. It’s a 4 year project between Action for ME, Edinburgh University and the Genetics Centre of Excellence.

What Will PRIME do?

Coordinate and engage researchers by creating at least 15 new research collaborations.

Strengthen International Research Networks by forming two global groups (consortias), one with a focus on genetics and the other on molecular biomarkers.

Build a Public and Patient Involvement (PPI) pool with at least 100 trained contributors (people with ME and their carers) so that any research is created and shaped with lived experience at it’s centre.

PRIME is an exciting project but it’s just the beginning. We urgently need sustained public funding to make up for the neglect in research over the last decade.

Read more about PRIME on our website

New Research Project: PRIME – Building Infrastructure for Patients, Researchers and Industry for ME/CFS - Action for ME

New research project: PRIME - Building Infrastructure for Patients, Researchers and Industry for Myalgic Encephalomyelitis (ME/CFS).

www.actionforme.org.uk

#MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis

 

[InitialConditions]

From Facebook:

We’re excited to announce our new research project ‘PRIME’ which will create infrastructure for ME research in the UK.

Starting in October 2025 PRIME is funded by the Medical Research Council. It’s a 4 year project between Action for ME, Edinburgh University and the Genetics Centre of Excellence.

What Will PRIME do?

Coordinate and engage researchers by creating at least 15 new research collaborations.

Strengthen International Research Networks by forming two global groups (consortias), one with a focus on genetics and the other on molecular biomarkers.

Build a Public and Patient Involvement (PPI) pool with at least 100 trained contributors (people with ME and their carers) so that any research is created and shaped with lived experience at it’s centre.

PRIME is an exciting project but it’s just the beginning. We urgently need sustained public funding to make up for the neglect in research over the last decade.

Read more about PRIME on our website

New Research Project: PRIME – Building Infrastructure for Patients, Researchers and Industry for ME/CFS - Action for ME

New research project: PRIME - Building Infrastructure for Patients, Researchers and Industry for Myalgic Encephalomyelitis (ME/CFS).

www.actionforme.org.uk

#MECFS #pwME #MyalgicE #MyalgicEncephalomyelitis

Well, a bit of good news for once. Probably worthy of its own thread. (Done)

 

[hotblack]

Looks very positive. I wonder if there’s a way for S4ME to get involved?

 

[Jonathan Edwards]

This is where things start to get real.

 

[NelliePledge]

Let’s hope so

 

[Jesse]

Aligns well with the Decode results being out by then, so hopefully it will start some very targeted (and fruitful ) research.

But seems like the main goal is collaboration and setting research goals. Isn't the main problem always research funding? Will it also be helfpul in that regard?