UK: Walk for ME 2023

Andy

Andy

Retired committee member
From their Facebook post, https://www.facebook.com/WalkforMEU...cstrCnpyb1TEnsqB18rfLqdnb6aPea5xNpqwgPKzvgSHl

"Welcome to Walk for ME 2023!

The original idea behind Walk for ME was that friends and family members did a sponsored walk on behalf of a loved one with ME but this has expanded over the years with people doing walks, runs, swims, climbs and bike rides in countries across the world. People can do any event, any distance whenever they like!

We will again be supporting Invest in ME Research and ME Research UK as they focus solely on biomedical research into ME. We hope you will join the team this year and get involved. Please do contact us if you would like to do an event or know someone who would. Please do join this year’s Facebook event page at https://www.facebook.com/events/1266868370531625/ for updates on people’s events and fundraising activities!

To join the team just set up a justgiving page for Invest in ME Research or ME Research UK and link it to the Walk for ME team page at www.justgiving.com/team/walkforme2023. Everyone is welcome to join however large or small the event! Both charities are happy to supply t-shirts and other fundraising goodies to people doing events for them too.

There are lots of ideas and resources on our website www.walkforme.co.uk so please do check that out or send us a message on Facebook or email us at www.theteam@walkforme.co.uk

We would love you to join us in raising awareness of ME and funds for biomedical research which are so desperately needed.

Love Ian, Sarah-Louise, Geoff and Luke"
 
Merged thread

New Walk for ME website is now live and on social media

I'm really pleased to say the new Walk for ME website is up, and if you fancy checking it out and giving us a shout out on social media that would be very much appreciated! :) www.walkforme.co.uk

We are now also more active on social media if you'd like to follow us:
Twitter Walk_4_ME
Facebook WalkforMEUK
Instagram walk_for_me_
#W4ME

 
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ahimsa said:
I finally remembered to post about the new website on mastodon.

https://disabled.social/@ahimsa_pdx/110471105334440006

I don't have a lot of followers, but I hope it gets a few more folks involved!
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Thank you, greatly appreciated :) We are considering expanding to more social media sites, but as we all have ME it's a question of working out which platforms get the most traction for the least amount time and energy.
 
Tom Kindlon said:
I think it’s great the amount you post on Mastodon about ME/CFS matters. Without you, I think a lot of news-y items would never get posted there.
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Thanks, Tom :heart:

Mutual admiration society - I admire all the posting that you do on mastodon, too! :)

And you post on so many other platforms (twitter, facebook, instagram - and more that I've forgotten). It's amazing!:jawdrop:
 
ahimsa said:
Thanks, Tom :heart:

Mutual admiration society - I admire all the posting that you do on mastodon, too! :)

And you post on so many other platforms (twitter, facebook, instagram - and more that I've forgotten). It's amazing!:jawdrop:
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Thanks. Main other ones are Tumblr and Pinterest, and also post to some mailing lists. Am on LinkedIn but mainly use that just to post on some of the Irish ME/CFS Association activities I’m involved in.
 
IanMcPhee said:
This year people doing a Walk for ME have raised an amazing £15, 667.61, which brings the total to nearly £211,000 raised in the last 10 years.
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Congrats! :woot::trophy@

IanMcPhee said:
We are also now on Bluesky if anyone want's to follow us there. https://bsky.app/profile/walk4me.bsky.social
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Just FYI, that link is not visible to anyone who does not have a Bluesky account.

I'm hoping that at some point Bluesky will make these links public. But for now I wonder whether it's a good platform for activism / fundraising because you can't share links with others.

Anyway, I went to the Facebook account and found the latest post, the one with the cute kitty video.

I will help spread the word by posting about it on Mastodon with a link to the Facebook post and the main website.

EDIT: I thought I'd post a link so you can see what I posted.

https://disabled.social/@ahimsa_pdx/111405739727577512
 
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@ahimsa Thank you. The post is great It's an amazing amount people have raised, especially given the current economic situation.

We're just running the Bluesky account as a Twix backup really, in case Twix goes goes caput. Mastodon and Threads are probably better for activism, but I believe Threads isn't available in Europe yet, and I know quite a few people find Mastodon to technical to set up.
 
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