UK: NHS data sharing – deadline imminent

The deadline has just been extended to 'September' - I am not aware of a date in September so I'd assume the 1st.

Possibly giving them enough time to retire type 1 opt outs, and not replace them until say November? (I am unfortunately very suspicious of such an easy stall given that they haven't exactly been forthcoming with any details, on anything, to do with this, and therefore suspect...sneaky underhand devious things)

Of slight alarm to me, myself, and I (all 3 of us), is the reference to this all being in the 'national interest' - when I am not in the national interest, in any way, shape or form. In that I contribute squat but cost the nation resources and money. It could be seen as being in the 'national interest' if my health records were used as an excuse to help refine policies to stop this needless drain. Only 10 years worth of what it costs to 'support' me could, after all, buy a roll of wallpaper. The cost of keeping me alive for a week could buy a sandwich for someone 'vital' (to the national interest).
 
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Andy said:
"The creation of a central NHS digital database from GP records in England will be delayed by two months, the government has announced.

The system was due to begin on 1 July, but the date has now been pushed back to 1 September."

https://www.bbc.co.uk/news/uk-politics-57400902
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Do we know if the June deadline for patients opting out has been extended or if it remains the 23rd of June? I could not find anything on this in the couple of articles I read.
 
Peter Trewhitt said:
Do we know if the June deadline for patients opting out has been extended or if it remains the 23rd of June? I could not find anything on this in the couple of articles I read.
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The reason for the 23 June deadline was so that the there was a week for registering the Opt-out by the surgery before data collection commenced on the 1 July, I believe.
 
My GP practice has just shared the following on opting out of planned data sharing/marketing:

NHS Data Opt-Out

The current NHS Digital (NHSD) extract of GP data for Research purposes (known as the GPDPR) has been delayed due to NHSD wishing to review the way in which this data will be collected, to conduct more public involvement and information about the plans and change the way in which patients can opt out of the extract of their GP data.

Currently the only way to opt out is to complete a Type 1 opt out form and return this to the practice by the 1st September. However, this extract will not be taken until the NHSD have changed the way it will take the data and respect the patient’s choice for using their data. NHSD are introducing the following changes to the opt out process which will mean that patients will be able to change their opt-out status at any time::-
  • Patients do not need to register a Type 1 opt-out by 1st September to ensure their GP data will not be uploaded.

  • NHS Digital will create the technical means to allow GP data that has previously been uploaded to the system via the GPDPR collection to be deleted when someone registers a Type 1 opt-out.

  • The plan to retire Type 1 opt-outs will be deferred for at least 12 months while we get the new arrangements up and running and will not be implemented without consultation with the RCGP, the BMA and the National Data Guardian.

This means that you can opt out at any time in the future and NHSD will delete data that they already have taken for research purposes, the deadline of the 01/09/2020 has been delayed until a new system of opt out is developed. Hopefully, this will be a simple centralised approach via the NHS app or NHS website to avoid paper form and administration work for your GP.

We will update you when we know more about the NHSD plans to change how you can control who has access to your data.
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GP Data for Planning and Research: Letter from Parliamentary Under Secretary of State for Health and Social Care to general practices in England - 19 July 2021
https://digital.nhs.uk/data-and-inf...secretary-of-state-letter-to-general-practice

In a letter to all GP’s, 19 July 2021, Parliamentary Under Secretary of State Jo Churchill set out a new process for commencing data collection, moving away from a previously fixed date of 1 September.
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Most importantly, I can confirm today that, while we are continuing to work on the infrastructure, and communication for the project, we are not setting a specific start date for the collection of data. Instead, we commit to start uploading data only when we have the following in place:
  • the ability to delete data if patients choose to opt-out of sharing their GP data with NHS Digital, even if this is after their data has been uploaded
  • the backlog of opt-outs has been fully cleared
  • a Trusted Research Environment has been developed and implemented in NHS Digital
  • patients have been made more aware of the scheme through a campaign of engagement and communication
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