1. To read the 'News in Brief' post for w/c 9th Sept then click here.
    Dismiss Notice

UK ME/CFS Biobank Ask Me Anything thread, Thursday 14th December 2017, 2.30 to 3.30pm GMT/UTC

Discussion in 'Researcher Interactions' started by Andy, Dec 10, 2017.

  1. Piper

    Piper Established Member

    Messages:
    16
    Likes Received:
    98
    I was unaware of the event and therefore ill prepared to ask informed questions. Again, not a criticism.

    Probably will get back in my box and stay there for the next one!
     
    MEMarge, Barry and It's M.E. Linda like this.
  2. Inara

    Inara Senior Member (Voting Rights)

    Messages:
    2,707
    Likes Received:
    10,939
    Thank you all who organised and participated! I think it was a great event. I have no suggestions for change, I just liked it.
     
    MEMarge, eva, Barry and 8 others like this.
  3. Joel

    Joel Senior Member (Voting Rights)

    Messages:
    882
    Likes Received:
    4,692
    Location:
    UK
    I missed it due to other commitments but having just read through the whole thread it looks like it went very good and I found it very interesting. I think anyone who reads this thread over the coming weeks and months will find it interesting.

    Off the back of this thread I'm actually going to make a donation to the biobank for their Christmas appeal because I'm very impressed with everything I've seen and their interaction with patients. I almost can't believe this is in the UK but I'm very pleased it is because I think it is definitely going to stimulate better research here, stuff that might genuinely lead to answers.

    Thank you to @The UK ME/CFS Biobank for taking part and organizing it at your end, and for your hard work with the research and education in general. I think the education work you do with researchers/student is going to be very important just like the actual research.
    And thanks to @Andy who did all the organizing at S4ME's end.
    Fantastic job all round.
     
    MEMarge, Jan, eva and 19 others like this.
  4. It's M.E. Linda

    It's M.E. Linda Senior Member (Voting Rights)

    Messages:
    297
    Likes Received:
    2,329
    MEMarge, Jan, eva and 9 others like this.
  5. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    3,189
    Likes Received:
    26,352
    Get Wessely in!

    edit: my stomach turned on seeing my own post. I think we'd need something more structured for a slippery one.
     
    MEMarge, Inara, Barry and 2 others like this.
  6. Milo

    Milo Senior Member (Voting Rights)

    Messages:
    689
    Likes Received:
    5,114
    Very thankful for @The UK ME/CFS Biobank to engage with the patients and this forums, I have made a donation, and encourage others to make one.
     
    MEMarge, Inara, Jan and 11 others like this.
  7. Andy

    Andy Committee Member & Outreach

    Messages:
    7,330
    Likes Received:
    54,182
    Location:
    Hampshire, UK
    Slide show of the Q&A now created
     
  8. Inara

    Inara Senior Member (Voting Rights)

    Messages:
    2,707
    Likes Received:
    10,939
    Wow, great @Andy, thank you!!
     
    MEMarge, Ron, Trish and 3 others like this.
  9. Andy

    Andy Committee Member & Outreach

    Messages:
    7,330
    Likes Received:
    54,182
    Location:
    Hampshire, UK
    And with lots of help from @Inara , we now have a German version as well.
     
  10. Joh

    Joh Senior Member (Voting Rights)

    Messages:
    749
    Likes Received:
    6,135
    Location:
    Germany
    The German Association of ME/CFS shared the German translation on Facebook and Twitter and followed s4ME. :)
     

Share This Page